SILICONE IMMUNE TOXICITY SYNDROME

*here’s an interesting article I got from my support group.  The funny thing is, I have/had ALL those symptoms and have done many of the detox treatments…  I hope this helps others..

It is estimated that since 1962, between one and two million women have had silicone breast implants to enhance their physical appearance. Some 30 years later, hundreds of thousands of women are second-guessing the wisdom of this choice because they are now suffering with a new illness, silicone toxicity and immune dysfunction syndrome. This major health problem arose because of failure at many levels to protect the well being of humans in our world. It is important to understand a little bit about the silicone implant itself, which is covered by a shell or envelope, which is made of silicone in the form of a semi-permeable membrane.

 The big problem here was that it was thought that this membrane would keep the silicone inside the bag. It does not and the silicone leaves the bag and is found outside of the silicone implant. As a matter of fact, it has been found all over the body, not just in the capsules surrounding the implant. The silicone is picked up by scavenger cells (macrophages) of our immune system and carried around the body. Various things happen where the exact mechanisms are unknown, but there is definite immune system dysregulation that occurs leading to a new syndrome. This is an important point.Note:

Until now, researchers have been trying to link this silicone disaster with old diseases of the autoimmune type like scleroderma, rheumatoid arthritis, and Lupus. In fact, they will never be able to link this problem to those diseases because we have the new disease and they are not looking at it in that way. We’ll go on to describe the characteristics of the new disease, but to try and link them to the old disease will get you nowhere. We don’t know why researchers think that this is the direction to follow.

We believe that in addition to the immune system being dysregulated, there is the onset of molecular damage called free radical or oxidant injury that occurs from the silicone being in the body. This causes another set of symptoms that are part of the syndrome.

There are many possible symptoms that the patient experiences.

We will mention only the major ones. They are:

As before stated, these are the major symptoms and there are others. When a patient suffers with the above type symptomatology and also has a history of breast implants, one should do a thorough evaluation looking at the comprehensiveness of an environmental history and physical examination. One should rule out diseases such as Lyme disease, multiple sclerosis, etc.

Studies of the immune system includes T-cell silicone immune study, silicone antibodies, complete auto immunity studies, immunoglobulin investigation, immune complex studies, biochemical profiles, fungal and bacteriological studies and skin testing. In addition, more complex studies might include PET, SPECT, beam, and EMG studies of the nervous system, as well as pulmonary function tests, MRIs of the breasts, and comprehensive digestive, and pancreatic studies if so indicated. The therapy for these patients needs to be directed at the flaws that are found in the patient’s biochemistry and immune systems. Just to mention a few of the areas that should be looked into as far as therapy, one would include:

Dietary management

Exercise advice

Intravenous nutritional therapy for detoxification and anti-oxidation

Oral nutritional supplementation

Immunotherapy to chemicals, foods, inhalants, and silicone if necessary

Environmental and chemical controls of the individual’s home and place of business

Varied immune modulation techniques including:

This is a very complicated illness and should only be taken care of by people with the comprehensive background in dealing with toxic environmental materials and their effects on the human organism. With this knowledge, these patients can be helped greatly in achieving a normal life again. It just takes time, patience, and hard work.

The answer to this disease is not the use of drugs for the symptoms that occur. Continue reading for more information on the impact of Silicone Toxicity on system functioning.

Cause

There is slow leakage (“bleeding”) of the silicone gel from the implants through the semi-permeable membrane envelope and also into and through the capsule that surrounds the implants. This is picked up by the microphages (scavenger cells) of our immune system and is broken down inside these cells which travel all over the body. The gel breaks down inside these cells, which travel all over the body. The gel breaks down into Silica and Silicon which causes an immune system dysregulation. Thus, there are antibodies produced against the silicon and also against the silicon and protein complex (organ systems) so that you get autoimmune illness.

As well, there is also damage that is not related to the immune system, because the silicone gel causes oxidants (damaging molecules) to be produced that directly damage our cell walls, DNA, and enzyme systems. All of this adds up to slowly-developing chronic debilitating illness affecting every organ system of the body.

Symptomatology

Peripheral Neuropathy (weakness, tingling, numbness, etc.)

Central Neurotoxic Neuropathy (cognitive difficulties, memory problems, hyperactivity, attention deficits)

Cervical and axillary enlarged or painful lymph nodes

Fibromyalgia (multiple tender areas)

Myositis (painful inflamed muscles)

Fatigue

Night sweats

Hair loss

Abdominal pain
Pulmonary hypersensitivity (shortness of breath, etc.)

Emotional instability

Joint and tendon pain

Multiple Chemical Sensitivities

Food and inhalant sensitivities

How Is This Syndrome Evaluated?

 

Physical examination

 

Studies to rule out other conditions such as Lyme disease, multiple sclerosis, etc.

 

Various laboratory studies:

Immune studies (Complex)

T-Cell Silicone Immune Study

Fungal or Bacteriological Studies (if indicated)

Biochemical profile

Skin testing (if needed)

Address each organ system damage individually depending on patient’s complaints

Immunological And Non-Immunological Damage

Therapy

 

Exercise: Moderate low-impact (daily)

 

Intravenous nutritional therapy: Detoxification Antioxidant

 

Nutritional supplementation (oral)

 

Immunotherapy Chemicals Foods Silicon Inhalants

 

Envvironmental and chemical controls

 

Immune modulation Transfer factor DHEA Immune stimulants: Thymus, herbals, etc. and Intravenous Gamma Globulin

Diet: Organic, High alkaline, semi-vegetarian, moderately high protein
Damage to the immune system leads to various autoimmune situations. Direct damage from free radical oxidant molecules leads to diffuse organ system damaging effectsBrain: PET, SPECT, BEAM, EMG, etc.

Pulmonary: PFT

Rheumatological: Snyovial Fluid

Breast: MRI, Xeromammography

GI: Digestive studies, pancreatic malfunction

Immunological: Chemical Antibodies

Silicone

Antibodies, T-Lymphocyte

subpopulation, Activated

Lymphocytes, Lymphocyte Immune

Function, Natural

Killer Cells and Activity, Immune

Complexes

Complement Levels, ANA, Autoantibody Analysis (Myelin, Striated Muscle, Thyroid Skin Antibody Collagen Antibody)

Skin Testing (chemicals, foods, etc.)

In-depth history (including details of implant problems)
There are so many possible symptoms that the patient may experience. I shall only mention the major ones here. Almost any symptom can be related to this syndrome, either directly or indirectly;
There are several forms of the chemical in breast implants that can cause a problem in the human organism. Silicon (Si) is the basic element and probably causes immune system changes. Silica or SiO2 (chemical formula) is the form it is mined from the earth. Silicone gel is a synthetic material containing 38% silicon. The silica is 45% silicon.Thymus therapy

Intravenous gamma globulin

DHEA

Peripheral neuropathy

Central neural toxic neuropathy

Cervical and axillary lymphadenopathy

Fibromyalgia

Myocytis

Fatigue

Night sweats

Hair loss

Abdominal pain

Pulmonary hypersensitivity with dyspnea

Emotional instability

Joint and tendon pain

Multiple chemical sensitivities

Food and inhalant sensitivities

Skin problems

Something to keep in mind about saline breast implants is that they too contain silicone. Manufacturers of saline breast implants use silicone in the outside shell of the implant that contains the saline liquid. The silicone shell can break down over time leaving a toxic sludge in the breasts making it very hard for doctors to remove completely. The removal surgery is costly and very painful, and in many cases, not all the silicone can be removed.

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I’m including a link that a woman fought very hard for to have this issue taken seriously because her kids were damaged as products of being born to a mom with implants and doctors were ignoring it:  The kids are so allergic to silicone because of it, they have anaphalatic reactions and end up hospitalized.  This test PROVES that you are having a reaction to silicone, if your doctors are telling you “implants are totally safe”…again, this is just one of the many issues of implants.  Mine was more the microbial illness. 

http://betterlabtestsnow.com/silicone-hypersensitivity-panel.aspx

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I was raised by an amazing mom and dad.  They taught me great morals and work ethics and showered me with love and support always.    When I was 28 I decided to ask my obgyn who I so loved and trusted, what she thought about me getting breast implants.   She said, “sure, why not? many of my patients have them..”  To me that was the green light.  I had friends who had them done so I asked one who had hers done a month prior who she went to.   Well I was making decent money and thought, yea!  I’ll fill out my clothes better.  I worked in the beauty industry and it all seemed right.  I didn’t want to go crazy because i have a small frame, I just wanted to not have to wear a push up bra anymore.  

As  a side note, none of my friends with implants live without one health condition or another.  Sometimes people just have to have the lightbulb go on their own though…  So anyway, when I got the spheal from the ps (plastic surgeon) saying how ‘happy’ I’ll be, I did it, with mom and dad by my side.  Mom’s support and dad’s support but more out of worry because he didn’t really want me to have this surgery.  This is how un-researched I was.  I didn’t think twice about the huge Dow Corning suit in the 90’s because it was about silicone, and I was getting the Saline implants.   

 ALL implants are made of
silicone, just filled with different things.  There are
some 40 “KNOWN ” neuro-toxic chemicals that go
into the manufacture of silicone for implantation.
1)Methyl Ethyl Ketone                                   
2)Cyclobexanone
3)Isopropyl Alcohol
4)Denatured Alcohol
5)Acetone
6)Urethane
7)Poly vinyl Chloride
8)Lacquer Thinner
9)Ethyl Acetate
10)Epoxy Resin
11)Epoxy Hardener
12)Amine
13)Printing Ink
14)Toluene
15)Freon
16)Silica
17)Flux
18)Solder
19)Chlorplatinic Acid
20)Metal Cleaning Acid
21)Formaldehyde
22)Talcum Powder
23)Color Pigmentation (Printers Ink)
24)Oakite
25)Cyanoacyrylates
26)Ethylene Oxide
27)Carob Black
28)Xylene
29)Hexone
30)Benzene
31)Hexanone 2
32)Thixon-OSN-2
33)Rubber
34)Acid Stearic
35)Zinc Oxide
36)Naptha
37)Phenol
38)Methylene Chloride
39)Platinum Salt
 
I feel silly when I read this list and think, how could I be someone who eats right,  exercises, takes great care of myself, but paid to have these toxic chemicals surgically placed over my lungs, ribs and heart, damaging perfectly healthy tissue, nerves, and immune system….then I forgive myself because I was just a victim of the FDA.  I’m not the first, and I won’t be the last…

* Here’s something to think about-cancer cells are mutated cells.  Mutated cells can be  caused by things your body doesn’t recognize,  like toxic chemical build up.  Your body tries to attack the foreign objects the best it can until it is defeated and outnumbered and the cells mutate and multiply.  That’s why Anti Oxidants are so important because they are what neutralizes the oxidation of the cells which can lead to cancer.  I’m not saying cancer is black and white by any means, I’m just saying we can be aware and not feed it per say. 

Here’s one of my favorite websites: www.cosmeticsdatabase.com 
I use it all the time.  Plug in any ingredient (try any from that list I just put up) and it will give you a
number 0-10 on how toxic it is and in what way, cancer causing, neuro toxin, etc. 
After really starting to pay attention, it starts making sense why cancer is so prevalent in society today.  Between what we put in and on our bodies , there’s so many man made chemicals found in everything, we completely forgot what ‘natural’ is. 
And the sad part is, just because it says “natural” on the box, you still have to read the ingredients.  And most of the time, you will find ingredients you either can’t say or have never heard of.   So odd. 

 

Here’s another 2 cents – if something seems too good to be true, it probably is.  Sure my implants looked pretty good I must admit, but now i had complete numbness on both sides of my breasts.   That wasn’t ok and the feeling never came back.  I specifically had asked him that question before hand and he assured me, all would be good.  not true.  I also asked if I would be able to breast feed one day with them in.   “sure no problem” was his response.  That was an opinion coming from a man who will never nurse a baby thru a toxic breast. 

So there’s an amazing Canadian Dr by the name of Dr. Pierre Blais who is a former member of what would be equalivant to the FDA of Canada.  This was part of his interview with the board of our FDA in 2000.  He is a scientist who has done the longest and deepest study of  the impact of breast implants on the human body worldwide.  He started in the 60s.  He has studied hundreds of cases of ‘failed medical devices’.   Here is an excerpt about breast feeding and implants and how implant patients are looked at as dollar figures.  

  “The issue of the so-called selfishly oriented
recommendation against breast feeding is absolute. It
is a cosmetic issue and also one of risk.
Now, the issue of the offspring is secondary, but it’s
just as important in the ethical sense because we now
have implants that are not secure in terms of
integrity, which are known to be colonized by a broad
range of microorganisms which have access to the
breast, and the breast is fully engorged and
responsible for distribution of milk precursor product
to the implant.

Therefore, the implant constitutes a direct channel
for transmission of an infective vector to the
offspring. This concept is so old that you will find
it in European texts in 1965 Contrary to opinions expressed this morning, the
saline implant is not a 1968 discovery. It’s a 1960
discovery, and to make it even more embarrassing, it’s
a Canadian one at that. It is my brethren who has
foisted this on you. It is older than the gel implant.
It’s been known since the beginning that they
constituted a microbiological hazard that would
preclude absolutely any recommendation for breast
feeding.

Finally, to conserve and try to establish a record of
being timely, the issue of radiography must also be
addressed. It is also transparently obvious these
devices, the very shell is structured and is
radiopaque. As such, the uniqueness of the shell, its
structure and its peculiarities, preclude any form of
meaningful radiodiagnostic oncology aspect. The
implant is not just a confusing factor. It is capable
of generating both false positive and false negatives.
Therefore, there should be an FDA recommendation with
respect to deemphasizing any value of radiographic
assessment for tumors.

Then last of all, I have the issue of cost. How and
why did Canada governments become interested in breast
implants? It had nothing to do with the health of the
user, the offspring, the safety, or the cosmetic
aspects, what we call efficacy. It had to do with
cost.
Some of you know that Canada operates under a medicare
system. In the early days of this debate, which is the
late ’70s, I performed a study on health care cost,
which is easy to do. It’s only a computer issue in
Canada, as we have the record, and a very strong
outcome came.

Anyone implanted consumed four times our health care
resources of a corresponded age adjusted individual. I
haven’t done the study since. I’m scared.

Now, this has enormous implications. If you do a
macroeconomic analysis of this phenomenon, you will
observe that both primary and secondary health care
costs of some states and incidental to
Medicare/Medicaid, which does operate in some states,
you find that it exceeds in some cases the actual
promotion studies, the cost of promoting the
technology.

Now, as a result of this, everyone, whether or not
they have implants, are affected. They are affected in
the sense that third party insurers, HMOs, and
everyone else who is in the health care funding
business is looking at breast implants with much
concern for good reasons, because they attract health
care procedures,and they attract health care costs.
One doesn’t have to be the rocket scientist to figure
this out.”

A man that speaks the truth! 
Maybe if I’d known the truth from the start, nah, well then I wouldn’t be here today inspired to put it out there for others…everything happens for a reason, I’ve always been a firm believer. 

164 Comments

  1. slsmith said,

    October 20, 2011 at 10:03 am

    I am curious if any correlation has been found between the IUD Mirena that is silicone based and emits an artificial progestogen over 5 years into the uterus. It appears from my brief research that the progestogen is mixed with a silicone 50-50% and that together the two are emitted into the uterus daily. I could be wrong about HOW the progestogen is actually released, but it looks like silicone is going out with it. A quick look at blogs on line show many women with severe complaints about the chemical effects adverse of the IUD, including severe depression, anxiety, panic attacks, skin problems, etc. where these problems did not exist prior to insertion of the IUD. It also appears that the artificial progestegen may interfer or suppress the body’s natural production of this essential hormone, contributing to cognitive and emotional distress. For info on Mirena, see http://en.wikipedia.org/wiki/IUD_with_progestogen

    • bebe444girl said,

      October 20, 2011 at 10:59 pm

      yah, wow, did you read the list of side effects? It blows my mind that they can tell you all the things that can go wrong in your body from a product, yet they deem it as ‘safe’. I had a friend who years ago had an IUD and had all the side effects you mentioned. Her body totally rejected it. When a foreign object is placed in the body, our bodies send out soldiers or ‘anti-bodies’ to fight it off. If it’s there to stay, that’s when you can get mutated cells or an auto immune response or any other awful side effects like rashes, inflammation, anxiety, etc. The silicone in there will absolutely cause those symptoms….look at all the toxic chemicals in silicone…do not believe the dr’s that tell you it’s innate. Silicone is a MAN MADE CHEMICAL.. so yes you are totally right about IUDs.. thanks for writing- it’s so good to get this info out to public knowledge, most medical dr’s are educated by sales reps who will convince them these products will do no harm to women…..

      • marie said,

        October 16, 2013 at 1:53 am

        are there any lawyers reading any of these stories??? any judges??? politicians??? anyone besides dying women??? nevermind asking the doctors to read any of this, they are off vacationing!

  2. Elena said,

    December 3, 2011 at 6:56 pm

    I have been very sick for a one and a half year. I just found out that my silicon breast have a leakage. I am shocked to see this is the reason for my sickness. I have had all kind of research and the dr could not find anything wrong with me. But now I finally know that this is not in my head…I have many of these symptoms. I´m also very angry that noone told me that this could happen !! I have had my implants for ten years and not once did I think that my sickness could be related to my breasts. I´m going to see a dr on wednesday to make appointment to take this poison out of my body if possible :(

    • kaou said,

      March 9, 2012 at 3:49 pm

      hi Elena may i ask what tests you did and found out that you have silicone toxicity?i have alot of symptoms to and i want to find out what is going on…..

    • Lucy said,

      May 26, 2013 at 3:02 am

      Hi Elena

      So sorry about being so ill, but congrats for finding out you’re not mad. Totally sympathise with your normal human reaction of anger at finding out the truth.

      En-bloc capsulectomy method of removal is recommended. go to
      http://www.breastimplantsupport.com for help choosing a surgeon. Try to get photos taken of implants removed. Mine had completely disintegreated & the chemicals & plastisizers had merged with my flesh & was dissolving a large part of my chest by necrosis.

      http://implants.webs.com/siliconeimmuneprotocol.htm

      I sympathize with your anger at being lied to for so long.

      Taking edible bentonite clay will help with removal of poisons. Take one day at a time. clay baths & clay on the skin will also help. http://www.aboutclay.com

      • Lucy said,

        May 26, 2013 at 3:05 am

        beg your pardon, it’s breastimplantsupport.org…

  3. Caz said,

    January 7, 2012 at 3:41 am

    Thank you for this information. I have been ill for the last 3 years. I have had my silicone implants for 6 years. I have had various tests and MRI scans for numbness and pain in my right side as they thought i had MS.

    I get treated for various other “problems” which now all seem to be related to my implants. These include heart arrhythmia, digestive problems, I am going to get a scan and see my surgeon about my implants, as i no longer want to live with these horrible symptoms!

    I didn’t realise that having implants would have caused this much damage to by body! :(

    • bebe444girl said,

      February 12, 2012 at 5:20 pm

      i’m sorry to hear of your ailments Caz. These are definitely all symptoms related to implants…the sooner you remove the implants, the better chance your body will have of getting back to normal. You can get your health back! Hang in there….and remember, you will NoT find a dr that will admit the implants are making you sick….we are just on the brink of it being well known enough that the doctors won’t be able to deny it for much longer. listen to your instincts.

      • marie said,

        October 16, 2013 at 1:58 am

        I don’t smoke, I don’t drink, I don’t take drugs, im actually pretty good at yoga and sports… but after my last child, and in my 40s, I went and got a little birthday present I thought would make me feel good into my old age… I was told directly to my face by a plastic surgeon that implants DID NOT cause medical problems…

        BOY WERE THEY WRONG!!

        k, I admit, I was ill advised… but I also admit that an entire planet of women are being “ill-advised”!

        why haven’t these killers been stopped?

        Im just lucky I can still read and type!

    • Rhonda said,

      June 8, 2012 at 6:30 pm

      How did you find out that your heart arrhythmia and digestive problems were from the silicone? Did your Dr tell you that? I have many symtoms along with many others. Now a week I had 2/3 of my pancreas reomoved along with my spleen. I’m wondering if silcone could have been a contributing facture?

      • bebe444girl said,

        June 12, 2012 at 8:48 am

        Rhonda- i’m so sorry you had to have parts of your organs removed. That’s what scares me about medical dr’s sometimes is they are quick to cut. Detoxing the body and organs is my 1st choice. If we didn’t need an organ, God wouldn’t have put it there, is my theory. I’m sure silicone is what’s affecting your system. It is foreign and toxic and has neurotoxins which disrupt everything in our bodies. The arrhythmia was actually due to a spleen deficiency (blood deficiency). My acupuncturist figured that one out. Since that was my last symptom. I took blood building herbs (i had to switch 3 times to accomodate my body). within 2 -3 months, my heart settled down. i knew it wasn’t stress related because i could be laying down super relaxed and my heart was beating out of my chest ALL the time for a year and a half….I had leaky gut because of the over load of toxins from silicone shell of saline implants. i know because as soon as i got them out, my digestive system started to heal.

    • Gabriella said,

      March 6, 2013 at 1:14 pm

      Hi, I cant believe I have found this… I have been “diagnosed” with MS but it doesnt feel right.. I have white spots on my brain apparently and am having a lumbar puncture on Monday. I have had silicone implants for 16 years and one of them has ruptured and I TOLD the doctors this but they say its nothing… did you get abnormal MRI scans too or could mine actually be MS I am wondering..?? I have night sweats ridiculously and my left side is not right, I thought it was drop foot but i also have much less strength in my left leg.. let me know about the MRI’s you had?? thank you!!!

      • March 6, 2013 at 2:37 pm

        Gabriella Get those suckers out asap! No doctor will acknowledge but who cares? You know your body best. I’ve had mine out since 8/12 and I have been off the Celebrex and Vicodin for a month now. If money is an issue get Care credit and ask for the interest free deal which they usually have for a year. Good luck!

      • bebe444girl said,

        March 8, 2013 at 2:01 pm

        Karen’s right Gabriella- your best bet is get off the sick medical merry-go-round. I jumped off after literally probably over 100 blood tests and heart tests right before the brain scans….they were telling me to just eat more salt (my bp was in the 70s) and that i was ‘fine’. As i laid there dying with mold in my body that they would never know how to find. Contact Dr Feng in Ohio. and ask about the spots on your brain. i hope the silicone hasn’t migrated there. But the immune system is junk as long as it’s trying to fight off implants “foreign invaders”. It will never have the capacity to fix YOU. I was in a wheelchair with MS symptoms. i had a positive ANA but decided I didn’t want a diagnosis of what auto immune disease, so I let that go too..I used to sweat thru my sheets every night and my hands and feet were so cold they ached… i know it’s hard to walk away from medical drs when you feel so sick but i only went to a ND and 3 chiropractors who specialize in environmental toxicity and I have ZERO symptoms. And I got my implants out as SOON as I put 2 and 2 together, most importantly. I slowly detoxed my body for a year. good luck-if you go thru with your lumbar puncture on monday. that sounds awful !!!

      • Carey said,

        March 23, 2013 at 8:34 pm

        I had silicone implants for 29 years. After a mammogram the Dr. sent report to my PCP, but her PA filed it in the wrong place & my PCP never received it. I was called by radiology to come in after 6 months. The clinician showed me my last report & I was outraged. I went to my PCP’s office & talked to the manager. They were wrong, I was right, I suffered, OOPS! I had surgery, they found 70% leakage from one implant & 40% leakage from the other! I saw a breast specialist who said she could not remove the silicone without dangerous surgery & disfigurement. My symptoms are: exhaustion, skin, scalp, thinning hair, digestion, fatty liver, 5 out of 6 liver tests way out of wack (I am told it can turn into cirrhosis & I don’t drink a drop.). I feel like doing nothing, no energy. Doctors won’t believe me. I need to find the availability of the silicone poison blood test. I need to find a doctor who knows about silicone poisoning.I am ready for a nursing home! Help! I live in CT. Thanks so much for this forum!!

      • bebe444girl said,

        March 23, 2013 at 9:43 pm

        Carey- I’m so sorry that dr’s and their staff can be so negligent when it comes to serious health issues. Here’s a link to Lana’s page. She’s done wonders getting this test to be taken serious. And there’s lots of info on her page.

        https://sites.google.com/site/siliconehypersensitivity/home/request-the-test

        I also highly recommend dr Feng in Ohio and dr Kolb in Atlanta as skilled explanation surgeons.
        I would also recommend you check out Liquid Needles for detoxing silicone out of your body and organs.. It’s a soak you use in the bath. But there’s a whole protocol to follow. Just something to look into. Don’t give up hope. Hang in there!!

      • Carey said,

        March 24, 2013 at 9:39 pm

        I think I have a connection to getting a silicone toxicity test with codes and such, just have to get them to my PCP. I want to see a blood level and then detox. I feel my whole self is poisoned. It’s like a computer virus, no specifics but everything is out of wack. How can this be? Scalp itching, thinning hair, skin problems all over my body (especially back), digestion problems, fatty liver, liver tests 5 out of 6 elevations, high elevations, problems thinking and with emotions, pure exhaustion & fatigue. Headaches, dry eye. I have had water collect around my heart and lungs, proved by emergency MRI. It went away but seems to come back in small ways-hurts to breathe. Winded and weak all the time. I am determined to find the answer & get detoxed to get my health back! I finally have some amount of hope because of this site & its support. Truly doctors DON’T GET IT! What suffering so many have been through. Someone needs to be held accountable. My symptoms started in ’09 and I didn’t make the cut off of lawsuits because I wasn’t sick until after the rupture (40% & 70%). Anyone know of current lawsuits or have I missed the boat?

      • gabriella said,

        March 24, 2013 at 2:17 am

        Hey carey, that’s awful!! It took me a while to find somewhere. In the uk to test but in the end I found someone, don’t give up! Have asked a friend who’s in CT also and works at a hospital so will let you know. Sending positive thoughts.. Also, look at diet to help with the symptons, juicing is apparently great and eating corriander removes metals from your body aswell as colonics, read the other comments here but there is some good support!! I’m on an alkaline diet so google it.. Good luck will let you know ifi I find a silicone test for you xx

      • marie said,

        December 5, 2013 at 11:04 pm

        wow, I have read a lot of stories, but yours really is close to my own story. I went blind in one eye and, of course, ran to the hospital. this led to an mri of brain and spine. they found ‘white spots’, and basically after all the tests and meetings were done… my neurologist said: Marie you’re an ENIGMA. sent me home with migraine medication, and still experiencing all the stroke symptoms I went to the hospital with…”dizziness, loss of speech, numb on one side, blind in one eye…”

        anyone else out there not want their neurologist to tell you you’re an ‘enigma’?

        after all the testing (probably costed the medical system a quarter million dollars or more just for the past 2 years) I have come to my own conclusion… we are all guinea pigs.

  4. Jas W said,

    March 7, 2012 at 5:31 pm

    Hi bebe444girl,
    Thanks for sharing this with us. I too am facing explantation and I’m looking having replacement – i’m so sick of being sick for so long! I’m wondering where do your holistic docs, I asked my primary and Rheumatologist, they think silicone has nothing to do with my chronic illness and think I’m crazy doing the explantation. I really hope to find someone good and can order these tests for me. Thank you so much, I really appreciate it!

    • bebe444girl said,

      May 2, 2012 at 2:47 pm

      Hi Jas, sorry it’s taken so long to get back to you. That’s the biggest issue with implant illness is the allmighty dollar. Plastic surgeons, implant reps and manufacturers make WAAAAYYYYY too much money to admit they’re making women deathly ill. Men with calf and peck implants get chronic illness too from chemicals inserted in their bodies, so it’s not just women suffering. I hope you really consider not getting any replacement…lifts or fat grafting are SO much safer without all the risk of chemicals or bacteria/fungus lying over your vital organs. I’d recommend a chiropractor that uses applied kinesiology to help you with your chronic illness. They know the most about environmental toxicity, which is what we’re dealing with. Medical dr’s rhumetologists, etc, don’t know how to adress these issues…they just prescribe drugs that damage more organs. Check out the site http://www.icakusa.com. They have a list of practiotioners that might be close to you. I’m in So CA, let me know if you are close..and good luck!

      • Gabriella said,

        March 20, 2013 at 10:13 am

        Hey, me again :) just got back from an ultrasound which showed up negative to ruptured implants.. can that be right?! I am SURE these are ruptured but either way I am definitely sure they are the cause of my white spots.. went to a really good natural health doctor/chiropractor who does electric accupunture also, he did some major tests on me and says my lymph and lungs are showing up with severe problems.. its GOT to be the implants right? the doctors wont hear of it and make out I am mad but I am pushing forward.. just did a silicone hypersensitivity test which I should hear back from in a few weeks but did anyone else have an ultrasound that was negative? I am FORCING them to do an MRI but think even then it could be inconclusive?! comments?? x

      • mamaz57 said,

        March 20, 2013 at 2:01 pm

        Don’t bother with the cost of MRI. You’re silicone test results will confirm what you think. Please file with FDA because eventually there will be a class action suit again. Get those suckers out asap! I had mine removed 6 months ago and I have experienced dramatic results regarding my health. I doubt I will ever be the same as when I was in optimum health as my joint are screwed now but a lot of relief is better than none. Good luck!
        Karen

      • Gabriella said,

        March 21, 2013 at 12:23 am

        Thanks mamaz57.. I am in the UK (this disease travels :)) luckily we have the NHS which is a free service but naturally, its harder to make these guys believe anything which they are not told by the pharmaceuticals.. I had to write to my local MP (member of parliament, dont know the same term in US) just to get these looked at as the “specialist” here wont explant unless you have diagnosed cancer… will not be giving up this fight though and I have printed off the 25 pages of this site (and others like lana merriam’s story) to send to him to read..get the results back on the 2nd April but gotta find someone who is experienced at explant and as they are all saying they arent ruptured and dont even know about en bloc (well the monkey I saw yesterday didnt… I might have to pay for a good surgeon and then sue the hell out of the NHS… this is going to be BIG news over here as everything is made of silicone and I couldnt even find what the content of the penicillin was that my sons allergic too… they just dont publish it here… thanks guys, your site is SO useful.. already referred it to a friend of mine who wont admit there is anything wrong in her implants but one of her sons (born when she had implants in, the others not) has severe asthma and she is now got an irregular heart rhythum which i think might be a start///

      • Rhonda said,

        March 20, 2013 at 4:21 pm

        If your altra sound showed no rupture I too would have the MRI done. After that, if they are not showing a rupture, it could be slowly leaking (bleeding) into your system.

      • Gabriella said,

        March 21, 2013 at 12:25 am

        Thanks Rhonda, going to get as much out of these guys as I possibly can… they dont know if I will be “accepted” for an MRI however as there is no proven leak, but I am still pushing… thanks again, your comments and support is invaluable x

  5. Kat Sides said,

    May 3, 2012 at 5:58 pm

    I know I have leak.I have things that are. Very toxic to me . Had a heavy metal test today .Going to call and ask to be tested for sylicone. Don’t want look like freek but I love my faimily more . Got implants before 30 now 60.

    • bebe444girl said,

      May 4, 2012 at 5:06 pm

      the doctors will tell you silicone is inert and that it can’t make you ill. that statement is completely false. there are so many chemicals and heavy metals that make up breast implants that would make any human body malfunction. See if you can get a Silicone Hypersensitivity test done. That way if it comes back positive, you can at least prove that your body is allergic to the silicone and you might get insurance to cover the explant surgery. You want to get it done right by a dr who knows the importance of getting EVERYTHING out of your chest wall. Any residual can keep you ill. and you wont look like a freak at all- it could take up to a year for your compressed tissue to ‘fluff back out’ but it will…and there’s always the option of a lift or even fat transfer which is more natural and not chemically ridden. Go to saline support on yahoo groups if you want to find answers and a list of good plastic surgeons that can help…best of luck! ~

    • Carey said,

      March 24, 2013 at 9:54 pm

      I got implants early twenties and am now 59. removed implants 3 & 1/2 years ago with a 40% & 70% leakage that I wasn’t even aware of. I had a cough so I had an X-Ray, CAT scan and finally MRI. The MRI showed rupture in one and in-conclusion in the other. Dr would only remove one of only one ruptured (well, it is not HIS breast!) Turned out both were ruptured (as above says). I asked what will happen to my breasts? Dr. said, “They’ll sag.” So compassionate! I wanted them out. Turns out they look pretty good, surprisingly so, Dr. was surprised, too. But I deal with a lot of silicone poisoning, there was a boatload of residual silicone they couldn’t get to. Dr. said it is like scraping super glue.

      • Gabriella said,

        March 26, 2013 at 7:23 am

        gosh Carey thats the best post I have seen.. know its vain, but I cant help but panic that mine are going to look SO awful… :( they looked dreadful before I had them put in, thats why I had implants in the first place as I lost so much weight but I dread to think what they are going to be like now… much rather be healthy though and get rid of these sodding mood swings too!! My issues are more of a psychological nature although naturally they are diagnosing me wiht MS as everyone else and I have a dodgy knee and weak leg but the mood swings are a killer!! Thanks for your post Casey!

      • Anita frigo said,

        April 3, 2013 at 12:26 pm

        Hi Carey, I’m writing this from my bed. I live in CT also. I’m schedule for enbloc surgery with Dr, Christina Ahn in NYC . I too have been very sick for over 10 years. Dow implants 1985. Just found out with yearly mammography that my implants are ruptured.Of course other PS just wanted to exchange them w/ new ones. I was diagnosed with Lyme & fibromyalgia and treated for 10 years with no improvement. To make a long story short I found Dr. Steven Meed NYC, rheumatologist who specializes in chronic fatigue, Lyme & fibro. I went to see him to address the chronic fatigue. He told me I didn’t have Lyme and I was sick from my implants. He is sure of this because he has worked on over 700 cases just like mine.Once the implants are removed I will be under his care to treat the damage the silicone has done to my body. Please feel free to contact me if I can be of any help. Also Dr. Ahn comes highly recommended as being one of the very few whom can perform implant removal the correct way. She will do an uplift and at a later time, she will do fat transfer.

      • bebe444girl said,

        April 3, 2013 at 8:02 pm

        Anita- that’s wonderful that you have a rheumatologist reference…what a God send he sounds like. Most of them tell you you’re crazy if you think it’s your implants. I hope you can get as much removed as you can…i’m sorry to hear about the rupture. I’ve heard Dr Ahn is good as well. sounds like you’re in good hands! yay

      • Rhonda said,

        April 4, 2013 at 4:18 pm

        Keep me updated on your treatment. I also have this problem.

  6. June 1, 2012 at 5:31 pm

    see breastimplanthelpline.com for help and information. Lawyers helping women with silicone breast implant class action claims Sheryl Berkowitz is a great Silicone breast implant class action lawyer

    • Rhonda said,

      November 18, 2012 at 6:19 pm

      Lisa,

      Thank you for the info.

  7. Emma said,

    June 1, 2012 at 11:01 pm

    I had a ruptured pip in Jan which was removed and replaced. Found out 6 weeks later there is silicon in the lymph nodes which consultant advised me to leave there. Now started to experience twitching and numbness. Very scared. Been to gp who has organized test of calcium and magnesium levels. Looking at this I’m wondering if I should get new implants removed and push to have some lymph nodes removed? Thanks

    • bebe444girl said,

      June 12, 2012 at 8:41 am

      i’m so sorry you were talked into getting replacements. PIPs are the worsT as i’m sure you’ve seen all over the internet. They are the lowest grade of silicone out there and extremely toxic to the body. I would highly suggest getting them out by a SKILLED surgeon and have them try to get out any loaded lymphs out they can get to. The longer they’re in the body, the more the body will try to get the silicone out. once it’s running thru your system, it’s harder to remove. Contact Dr. Kolb in Atlanta or Dr Feng in Ohio if you can. hang in there!

      • December 13, 2012 at 11:41 pm

        I have been sick since 2007,about 6 months after mine were put in. I had cancer and was told they were safe. I have level 3 kidney disease and they treated me for lymes I can barely get around my back always hurts and my skin tingles all the time. I seem to have trouble finding medications I can tolerate. I have no insurance and at this point I have prepared myself. I also have RA. I know it will kill me and I hope I don’t suffer,. My fear is I will end up in a nursing home. I am 56 and I am useless. I will never get the help I need but I still pray.

    • marie said,

      December 5, 2013 at 11:17 pm

      Emma, get the silicone out of your body! currently I am on my way to hospital for a double mastectomy. my surgeon was against taking out lymph nodes as well, and Im not sure Im ok with this, even tho they are obviously affected. from 5 feet away my young daughter can diagnose my lymph nodes they are that obvious!

      our first reaction to devastating news is to try to filter it out as best as we can using the useless harmful lies the doctors tell us. (kinda conjures up visions of shady characters in dark shadowy back alleys trying to sell us a hot item) the doctors play our feelings like a harmonica. we are putty in their hands.

  8. Emma said,

    October 12, 2012 at 2:35 pm

    Thankyou ladies for your comments and help i had the mirena IUD and got the silicone poisioning from it. I was on deaths door earlier this year. Thanks to a good natropath in the US and also the help from a local chiropractor who does applied kinesology i am slowly recovering.

  9. karen lopez said,

    November 18, 2012 at 2:46 am

    ladies, the only way we can beat this is with a class action suit. Time is imperative for statute of limitations.

  10. Beatriz Cowap said,

    December 7, 2012 at 6:12 am

    I just got my implants removed in November this year. I have been sick with auto-immune type illness for several years. In Feb found out I had leaking PIPs, my surgeon said if I replaced with Nagor implants my symptoms might improve, but he really did not believe that there is a connection between implants and sickness. Had the surgery but got a lot sicker and only after much research did I realise that yes implants do cause terrible things to happen in our bodies and that my surgeon should have removed faulty implants enbloc instead of splitting the capsule, this I believe is the reason I got sicker over that last few months. Now implants are OUT and so are several lymph nodes. I will start to detox my body and hopefully return to the life I loved before my stupid decision to get implants 10 years ago

  11. Ganae said,

    December 17, 2012 at 1:53 pm

    I had the Mirena IUD for almost 3 years and had to get it removed because it made me feel like I was dying. I have had it removed for 1 1/2 years now and still having lingering symptoms although, they have gotten much better than where I was a year ago. many other women had silicone blood tests done and normal levels are 1-10 and they all test at around 110+. I just hate that these things are still getting put in people. It has literally ruined the past 2 years of my life. I can’t wait for the day I feel like me again and can say this is a bad memory.

  12. Jennifer Carpenter said,

    December 18, 2012 at 4:36 pm

    Reading all of this makes me wanna cry and scream . I have both implants , had the merina ( removed last year) but same say had the adiana ( which is made with what silicone ) I’ve seen more doctors in the last 3 years then I’ve seen my whole life. I have been told they thought it was everything from LUPUS to RA to MS to freaking cancer twice in the last year . My lymphnodes are always swollen and I feel like crap 99% of the time when before I never had a problem . I always felt great now I never have energy and I’m always tired. My memory is so bad sometimes I can’t even remember my passwords, my bones hurt which is why they thought ra , my organs hurt why they thought lupus , I run fevers and no one can figure out why . My heart will race , I’ve ended up in the hospitial twice and I’ve gone crazy trying to figure out what the hell is wrong with me . I just want to feel normal again !!!!

    • Gabriella said,

      March 28, 2013 at 5:39 am

      Hi Guys, good news, with pressure put on by my politician, I have finally got them to agree to do an MRI.. !!! should have toxicity report back on Tuesday and meeting with James Mcdiarmid to have these suckers out on the 10th April… all going to plan… one problem… think I might be pregnant…. d’oh!!!! ANyone know whether this could be a side effect of the toxcicity and im not in fact pregnant? or whether I should still have them removed by general anaethestic?! bit lost now… done 5 tests, all positive and thinking eeeek what bad timing!!

      • Carey said,

        March 28, 2013 at 8:45 pm

        If you take a pregnancy test & the results are positive, you are pregnant. You can get a false negative result, but not a false positive result. The test detects the pregnancy hormone in your urine. It may be too soon to detect it at first, & turn out “negative”. If it turns positive, it has detected that pregnancy hormone & it IS certainly positive. Take care of yourself & your baby & see if there is a safe route to remove your implants. Silicone, whether filled or casing, is poisonous. I think the longer you wait the worse it could be. Prayers & blessings.

      • ganae vigil said,

        April 1, 2013 at 1:41 pm

        Hi all! I’m a Mirena sufferer and it sounds the exact same as what you all are going through. I was just curious if you all have a harder time/flare up of symptoms around your periods? It gets so much worse for me at this time and was trying to figure out if its the silicone in Mirena or the fake hormones or both. Thanks ladies and hope you all heal and can get on with your lives like I’m trying to :)

        On Thu, Mar 28, 2013 at 6:39 AM, mybreastimplantillness wrote:

        > ** > Gabriella commented: “Hi Guys, good news, with pressure put on by my > politician, I have finally got them to agree to do an MRI.. !!! should have > toxicity report back on Tuesday and meeting with James Mcdiarmid to have > these suckers out on the 10th April… all going to plan…” >

      • Debbie said,

        May 5, 2013 at 12:11 pm

        Hi Gabriella, I am also from the UK living in Jersey. Had a reconstruction with an implant which was done in UK. Became unwell with joint and muscle pain, sore throat, chest pain, Dr`s insistent it was not the implant and blamed being over weight and my age (53) Insisted it be removed and was explanted in August last year. Unfortunately the symptoms have progressed to chronic dry mouth, inflammation of eyes and have just been seen by opthalmologist who tells me I have a suspicious optic nerve ? glaucoma and have to have further tests. This needs to be brought out into the open so that women are aware of what these implants can cause.

      • Gabriella said,

        May 7, 2013 at 2:21 am

        Hi Debbie

        Thats awful for you and what a load of rubbish, how can your age be a factor?! this is what they are trying to do to me and saying as I am 35 its likely this has nothing to do with my breasts and IS in fact MS… bollox excuse my french! are you on FB Debbie? find me and add me gabriella artini and I will direct you to a couple of websites that you should update your symptoms with as your right, people need to know about this! Look at Sarah Myhill, google her she is in the UK and Knows about our condition.. yay, finally someone :) Keep in touch and be strong, there are women fighting this PIP scandal and they are all realising that its not just PIPS…its ALL “medical grade silicone” so I am sure something is going to happen soon.. My situation changed, I cant have an explant yet as I am pregnant and i also found out that i DO have PIPS… fab eh… just the present you want! anyway, keep smiling xx

      • Debbie said,

        May 7, 2013 at 2:25 pm

        Thank you for replying so quickly Gabriella. I will add u on face book. I am so desperate to find some answers. I know I am not imagining these things…………I appear to have too many symptoms now for it not be some kind of auto immune thing going on. I have a GP appointment tomorrow and I am going to ask to be referred to a rheumatoidologist so that appropriate testing can be done. I also have my eye appointment on 5th June.

    • Carey said,

      March 28, 2013 at 7:43 am

      I believe that my silicone poisoning is like a computer virus. When your computer has a virus all kinds of wacky, unrelated things show up so you can’t figure out what’s wrong & it drives you nuts until someone tells you or you recognize from experience that it is a virus causing the havoc. Then you bring it to a professional and get it fixed. I am still searching for that professional. I have many unrelated symptoms & (all) the doctors are stumped. They refuse to use common sense when I say it is the silicone harbored in my chest cavity. I am the nut. Test after test after expensive test. I thank God I am insured. These manufacturers should suffer half as much as we do! Keep on keeping on, as I do, too. Journaling may help you to keep track. We are our own best advocate. Keep looking for answers, you will find them. God bless.

    • marie said,

      December 5, 2013 at 11:30 pm

      my mother and grandmother were right… we should never change the body that god gave to us. we should accept it the way it is and have good health till we are 100 years old!

      your symptoms are my daily norm. im on my way to get a double mastectomy on Tuesday. I will keep you guys all posted with my recovery. but I must add here that the nurse doing my workup today for my pre administration for surgery said straight to my face that I am making the right decision, that she personally sees girls recovering from auto immune right before her eyes post op. and they continue to recover thereafter. I heard it with my own ears from a nurse that works the front lines in surgery. most nurses would never trust a doctor! LOL

      everyone says Im radical with doing the double mastectomy, but what was more radical was me letting a doctor fill my boobs up with toxic material! I did the crime, so now I do the time, BUT, Im going back to my life. I jump out of planes for fun, and my husband says “now I will be more aero-dynamic!” I used to jog, I used to play tennis, and Im going back to that life come hell or high water!

      take my tits, but im no longer a guinea pig!

  13. Connie said,

    January 15, 2013 at 3:25 pm

    Does anyone ever just consider the plastic the implants are in. That is silicone too. I chose saline .. but never thot the plastic was silicone.
    Ive been sick for over ten years. How can I afford to take em out. How can I afford not to…. and the risk of surgery is greater when one is “sick”.

    • mamaz57 said,

      March 8, 2013 at 5:34 pm

      care credit, ask for the interest free deal for a year. I had my implants removed 8-2012 and I feel 70% better.

    • marie said,

      December 5, 2013 at 11:33 pm

      I found it torture to drive around the province seeing specialists when I could barely walk, and then to debate them???? ya right, when you are sick and feeling like you should be making out a will…fighting the medical system is not high on the list of priorities

  14. Dota said,

    January 20, 2013 at 10:14 am

    I’m on my second set of breast implants. The first set were silicone I got in the mid 80’s& the second was saline 10 to 12 years later. I had hardening with the silicone implants & pain in my right one which led to me having to have replacements. At the time I choose to have replacements I had no idea I would end up in so much pain not long after having it done. All the doctors tell me is I have Fibromyalgia. I’ve been in pain for so many years I don’t remember when it started. I use to think my muscle & joint pain was from over exercising. I’ve been very active my whole life up until about 5 fives ago. Now I can hardly walk each day to get any exercise. I usually do what I can even if it hurts me. Don’t get me wrong, so days I’m in so much painn I end up in the bed with a ice pack on the back of my head & taking pain pills to get some relief from migraine headaches & all over body pain. Here’s a few things I feel in my body, Fatigue, joint & tendon pain, Abdominal pain, rib pain, migraines, shoulder & neck pain, Emotional instability, shortness of breath, Peripheral Neuropathy (weakness, tingling, numbness), memory problems, attention deficits, multiple tender areas, painful inflamed muscles, electric shooting pain in my legs, restless legs & cramps in my legs & feet. I’ve spent so much money on every medical option there is. I’m just starting to research that my implants may be the cause of my illness. I need to find out where & what type off blood test to get. I live in Oregon & seeing my naturopath, she’s trying to help me. Please reply with info.
    Hanging in there!

    • bebe444girl said,

      January 22, 2013 at 11:45 am

      Dota- I wish too there was one ‘test to find out if your implants were making you sick’…the person that comes up with that is going to be a bizillionare. Before you go down the medical merry-go-round and waste a LOT of $…..know that your body IS reacting to the foreign invaders in your body. It’s like when you get a splinter….you know how it gets red and painful as your body is trying to push it out….the same goes for implants except your body can’t push them out. So out of protection, your body forms a scar tissue around it almost instantly. However, all those chemicals the silicone shells are made out of are slowly leaching thru that tissue. because skin is permeable. so it causes inflammaion and pain and fatigue, and then your body is being taken over with chemicals, so you start losing vital minerals, and get things like cramps, pain, stomach issues, etc. I was seeing a naturpath as well. She had me take a slew of blood tests, looking at different auto immune diseases because I too had a positive ANA. Honestly, my best bet was when I just went to my 2 chiropractors who specialize in applied kinesiology. They know the most about environmental toxicity which is what you’re dealing with. she said to me, do you really want a TITLE of what you have, or do you want to get better? she was right…I got my implants out and almost immediately my neck/back/leg/foot pain went away. I thought it was all because i was getting close to 30! You should not be in pain my dear…if you want to choose health over vanity, i’d recommend you just get them out and you’ll get your active life back, slowly…especially after that many years. It’s like turning around the titanic. But it’s worth it! So yes, the little devil will sit on your shoulder and say…but what if it’s not my implants….well then you can say to yourself, do they make me a healthier person? I just want the best for everyone and hate seeing the suffering caused by these greedy jerks who prey on women like us who thought they were improving their looks when all we did was damage our bodies God designed so perfectly. I mean, we put these toxic chemicals over our vital organs and cut perfectly good muscles to do it…..yeeks.
      there is a silicone hypersensitivity test by the ELISA act i think…you can google that. that might make you feel better if you can SEE you’re allergic to silicone…but there are many aspects to this illness. You may have a reaction to them or have a biotoxicity illness (like I had) and it might say you’re not allergic to silicone. So again, the best bet is to get them out if you’re not feeling well…stay strong and i’m so glad you’re looking in the right direction.
      bev

      • mamaz57 said,

        January 22, 2013 at 11:15 pm

        There is a silicone poisoning test, which is how I confirmed mine. Have your gp contact Autoimmue Technologies in Louisiana and it will cost about $150. I still can’t get a lawyer cuz this wave of implants are too new. However, if everyone starts filing with the FDA, eventually there will be a class action but unfortunately not everyone is aware of the steps to follow.

      • Carey said,

        March 24, 2013 at 10:07 pm

        I had explantation, but because of the major rupture (40% & 70%) I had many more physical ailments. My illnesses had to do with the spill over of silicone in my body that was not removable. I suggest everybody get those implants out because they will cause trouble for you…eventually. I am very ill, it took 33 year to get this bad, my explantation was 3 1/2 years ago. I have always been healthy, energetic, athletic and now I don’t even walk. Wake up and smell the coffee. With love and concern, Carey

      • marie said,

        December 5, 2013 at 11:35 pm

        there is one test, its not official, but its real… its called MILLIONS OF WOMEN CANT BE WRONG TEST

      • Tam W said,

        July 15, 2014 at 10:07 am

        Cant agree more! I had what I thought were saline implants for 9 years and was very ill for 7 of these years! (All your symptoms and ANA positive reading and yet auto immune doctors could not diagnose anything) In April 2014 I found out about breast implant illness and decided to get my implants en bloc removed ASAP! Turns out they were not saline but silicone and badly ruptured. The implants were a dark yellow Brown colour and they are meant to be clear like glass!! I am still unwell at times but the improvement even after a few months is so encouraging! I cant believe I didn’t get them out sooner! Or how this is allowed to continue! All these years bed ridden and not knowing why!!! Any ideas on silicone detox? I live in London UK Thanks

      • bebe444girl said,

        July 28, 2014 at 10:53 pm

        Talk about the ultimate deceit. That’s awful. I’m sorry you have leaked silicone. I know it’s tricky because there’s no way of ‘physically removing’ it once its in your system like that…however I know dr susan Kolb in Atlanta, Georgia has a silicone detox protocol. Maybe you could google her and find some info. I know she’s very helpful to women who email her. If you can’t find her email, let me know and I can talk to someone who can… Also I heard some buzz about liquid needles for silicone detox. Try searching google. There’s different soaks for different things, so look for silicone specifically. Good luck!

  15. Dota said,

    January 26, 2013 at 6:59 pm

    Thanks so much Bev! What you’re saying makes a lot of sense & I know you’re right. It’s a scarey thing to go through! I just figured I was getting old (58) & my body was breaking down. I’ve been active all my life exercising everyday. I do want to have my implants removed but, I don’t have the money. I’m trying to figure that out. I live in Portland, OR. I found a doctor in Seattle, WA. on one of thedoctors listed on the breast implant support blogs websites. Lately the whole right side of my body is really, really hurting to the point where I have to take pain pills 3 times a day just to get a little relief. I can’t lay on my right side at night without it aching & hurting. It wakes me up & I have to move to the other side. I counted how many times I have to turn over in one night, it was 15 times. I’m not getting proper sleep that’s for sure! When I’m talking sometimes there’s a long pause because I can think of what I’m trying to say, it just won’t come out! I feel stupid & people just look at me like, just say it already!!!! Anyway, if you know services that will with the expense of removal please let me know. Thanks!
    Dota

    • mamaz57 said,

      January 27, 2013 at 12:19 am

      try Care Credit, If you pay under a certain time frame without any late payments it’s interest free. I had mine removed in August and I’m slowly but surely feeling better.

  16. Dota said,

    January 26, 2013 at 8:17 pm

      if you know services that will help with the expense of removal please let me know. Thanks!
      Dota
  17. Dota said,

    January 27, 2013 at 9:28 am

    Thank you Mama57 for that info.

    • Sandy Brady said,

      March 8, 2013 at 1:33 pm

      My sister had implants put in years ago and they had ruptured. the capsule had totally disinegrated. 2012 she had replacement implants put in. My sister has all the systems you have mentioned. I would like to know if their is support groups in Australia.

      • bebe444girl said,

        March 8, 2013 at 1:52 pm

        hey Sandy – your sister is really lucky to have you, you sound like you really care about her and I love that. Saline Support and Breast Implant Survivors…i think that’s the name of the 2nd group both have women all over the world…i know there’s girls from the UK and Canada for sure….I’m sure if she got on either or both, she would connect with someone in AU. The women on these support sites are amazing and always trying to help each other out. Implants are such a sham and I can’t stand how many women they’ve poisoned and left to be felt like they’re ‘crazy’. Thanks for writing. I know it’s hard for some women to realize they’re breast implants are making them ill because sometimes it’s a very slow process, but I can’t tell you how many women I know get them out properly and feel back to their normal healthy selves. I wish her luck on knowing the truth! hugs

  18. Beatriz Cowap said,

    March 9, 2013 at 3:03 am

    Dota, hi.

    Reading your post was just like reading about myself. I to am 58yrs and have always lead a very active life until about 4 years ago. My symptoms started slowly after I had implant replacement in 2007. I began feeling fluey and achey a couple of days after a workout. This went on for a while and then I mentioned it to my GP, never thinking for one second that it was connected to implants. Eventually I cut out most exercise and just kept up with the walking. I was diagnosed with CFS and just accepted it, I still managed to work part time as a swimming coach but struggled daily with aches, sore glands and flu type symptoms.

    Feb 2012 I had yet another replacement due to PIP implants, my surgeon replaced with Nagor and thought that my symtoms of CFS might get better. From the day of the surgery I knew that something was very wrong. I started feeling really, really ill and my right breast had a burning pain that was so bad I thought that I had cancer. I was terrified.

    I carried on with my life as best I could, pushing myself everyday whilst thinking that I was going to die.

    I got a really bad cough that lasted for a couple of months, stomach problems that meant I was rushing to the bathroom 10/15 times a day, severe pain in my shoulder blade and across my chest. My GP arranged every test, CT scan and blood test possible, All came back fine. I then went to a breast cancer unit, had an MRI on my breasts and lymph nodes. The breast surgeon said that my lymph nodes were full of silicone and that he thought my pain and burning was due to my body fighting against the implants, he offered to take them out for me but I was still in denial.

    End of June 2012, I collapsed at work and spent several weeks in bed, I was scared that I would never get up again, I was so weak at this point and everything was giving up in my body. I knew that I HAD to do something. One day I sat and typed into google – COULD MY IMPLANTS BE MAKING ME ILL. I sat and read for as long as I was able to, the stories were just like mine. I saw several surgeons in my local area. all thought I was mad when I said that my implants need to come out, eventually I found a surgeon miles away from my home but she did an amazing job for me, explant with capsule removal, lymph node removal and uplift of remaining breast tissue.

    I now know that my first surgeon split the capsules open in 2007 and again in Feb 2012 and that allowed silicone to pour out into my breast and chest, causing my body to go into fighting mode and therefore having an autoimmune reaction. If you want to see my photos take a look on Real Self under the name Nerja 1.

    My aim now is to get stronger, the only things that I now deal with are weakness in my arms and legs, the odd sore throat and fatigue, I do have several good weeks at a time now but then if I do too much I crash for a while. Hopefully this will all get better with time and good food.

    My surgeon told me to listen to my body and do what it was asking me to do. I’m glad that I did and hope that you will do the same.

    Much love to you on your healing journey x

  19. gabby said,

    April 1, 2013 at 1:25 pm

    Hey Ladies, just got my silicone hypersensitivy results back and despite being sent spinning again after the lumbar puncture results came back again indicating MS, the silicone test results clearly show that I have elevated lymphocytes which relate specifically to the prescense of silicone..! They gave me an MRI scan appointment for this Saturday too but sadly I wont be able to do it.. found out last week that I am 3 weeks pregnant…d’oh!!! really gutted as had an appointment booked for the explant and felt really convinced that I needed to do it but now I cant at least for 9 months… REALLY hope this baby is going to be ok… if anyone has any experience of this, let me know!!!?!? Gabby x

    • bebe444girl said,

      April 2, 2013 at 9:33 pm

      hey Gabby – thanks for sharing your results. that’s awesome that you have tangible evidence that your body is ‘rejecting’ the silicone. Dr’s love to say it’s innert! I’m Super happy for you that you have a sweet baby growing, but also sad because yes, it would be so nice to have a clean nest for the little angel. I have a dear friend who also found out she was very ill from implants about 2 months into pregnancy. She had a really rough pregnancy being so sick from implants and not being able to take ANYTHING. and no, of course you can’t go thru the trauma of a surgery or expose that poor fetus to any kind of radiation. Don’t worry he/she will take what they need but you need to stay as healthy as you can! My friend had her implants removed 2 wks after she gave birth. Even thou it was a bummer she couldn’t breast feed….the breast milk might have been contaminated anyway…So now she’s a perfect happy healthy 2 yr old. So just hang in there. You know what you can take is chlorella. maybe like 1 every few days to start. After the 1st trimester. That detoxes heavy metals from the body…you don’t want to do any detoxing while pregnant, but that’s a natural one and that’s why i say only every few days. And / or eat cilantro. that’s a good food to pull out junk from the liver too. and safe while pregnant. yay. it’s early, so just rest, get the book Nourishing Traditions if you can. It has amazing recipes before you get pregnant, during and after, and for good health in general…she also just came out with a child/baby version in feb, i have that one as well….really good info!

      • Gabriella said,

        April 3, 2013 at 5:26 am

        Thanks SO much for that info, thats really great. I shall definitely get the book and will keep you all informed also. I am determined to get this out now, its been too long in the dark and people are really suffering now!! I am lucky right now as I have limited “symptoms” my only “symptoms” are the results of my MRI and the lumbar puncture really but I do have a weak leg and arm which is probably more to do with my alignment than anything.. will do accupunture to keep that at bay! :) seriously how we going to get these pharmaceuticals to stop this?? the NHS even came a breast implant for free the other week as the 24 year old was “depressed” having small boobs.. man, she is gonna be a lot MORE depressed when she suffers with them like us!! just annoying.. x

    • marie said,

      December 5, 2013 at 11:38 pm

      not me personally, but I have been reading a lot about children developing harsh problems with health and their immunity while developing after delivery by a mother with silicone implants

      • OneCarat said,

        December 14, 2013 at 3:41 pm

        I never considered my children being at risk for anything, considering I had my silicone implants in 1982 and they were born in 1991 and 1992.
        I thought of little damage, if any, because I breast fed each for only a month. They are 21 and 23 now. what kind of things have been reported? Physically they seem 100%. Emotionally my 23 year old is angry a lot. I figured this was from his father and his father’s abuse. We divorced when he was 5 & 1/2.

  20. Dota said,

    May 1, 2013 at 7:41 pm

    Hi all,
    Just thought I would drop y’all a note. It’s been two weeks since explant surgery. After surgery Dr. Gruber told my boyfriend I had 40 very dark colored cyst in my right breast & around 10 in my left. She described the color comparing it to dark ink. She said, she’s never seen cyst this color before, without hesitation she removed some & sent them to pathology for testing. The question now are they cancer or something else that needs attention not! I’m still waiting for the results. If they are then I’ll have to return for a second surgery. She said, her feelings are they are not but, has to make sure of course.

    The first day after surgery I made my first mistake & that was watching my boyfriend empty the drains. Drains are underneath each breast & have to be emptied twice a day, logged how much fluid CC’s from each breast. I was already weak & nauseous, then seeing what was in those drains, well enough said! I almost passed out! I have to keep a constaint bra on which makes it hard to sleep at night with drains & the bra.I pretty much have to sleep on my back.

    I had some difficultly with the pain meds the first few days. They seem to work but, made me have migraine headaches. I know, strange huh? The doctor said, they’re probably too strong for me & I was having an allergic reaction. So she changed to something weaker & I doing much better now. Of course pain meds cause other issues like constipation! Yikes! The last thing you want when you’re already feeling bad.

    Sam (my boyfriend) took me to my first appointment about 8 days after surgery & had these drains removed thank goodness! Sad to say I’m not looking to great but, I have time to heal & hopefully I’ll fill out some. I’ll probably have to wear an enhancement bra, I’ll have to wait & see. The good news is, I don’t have any more pain & symptoms in my hands, arms, feet & legs. I still have so symptoms/pain in my neck & shoulder but, I’m praying after I have time to heal that will also go away. I still have to go through detox too. I’ll start that in another week or so.
    Hugs, Dota

    • Gabriella said,

      May 2, 2013 at 11:36 am

      oh Dota, sounds like hell.. glad your through the worst.. like you say it IS going to get better and just great news that your already feeling physically symptom free.. keep us in touch with how it all goes for you and thanks so much for sharing your experience! I hope to get mine out as soon as this baby is cooked.. good news is I have finally got referred to a doctor who HAS done an explant before AND for a woman with PIP so its better than they were offering me before and best news is naturally its free so I can save the money for the massive detoxing after :) sending love and healing energy your way dota xx

  21. July 5, 2013 at 12:24 am

    Stunning quest there. What happened after?
    Take care!

  22. Rachael Fielding said,

    July 14, 2013 at 2:03 am

    Yeah, I can’t believe it either (that I just now thought of & found this site, some 11 s/p breast prosthesis explantation). I started to get ill within 3 mo’s of my breast augmentation. No one believed me for years – that is, until one day my serum labs finally sero-converted; now I’m diagnosed with SL, but like others mentioned : it just doesn’t feel quite right. It’s very painful, I’ll never be the same ever again. So damn many symptoms, and no one wants to hear about my constant daiky suffering any more (with my husband in the lead here, followed up by most friends, other family member & my doctors – including my new rheumatologist). If not for my son, now 19, I’d be dead right now for sure; he’s tge only one who still is empathetic, still cares. Such a wonderful young man – I’m lucky I have at least one person in my corner. And I think you all know that being in that corner is a tough row to hoe. What a freaking nightmare – and oneI can never wake from at that …

    Sisters, I feel the pain of each & every one of you as if was my own – because it IS my own!

  23. Jamie said,

    August 18, 2013 at 3:39 pm

    Has anyone had the Hair Tissue Mineral Analysis Test done?

    • Gabriella said,

      August 19, 2013 at 1:20 am

      Hi Jamie, no I havent,,, I did the silicone hypersensitivity test though, I want to do the hair mineral test though and especially want my son to do it too.. have you???

  24. Pam Driver said,

    August 22, 2013 at 10:47 am

    I to am having all the same symptoms and its just horrible and getting worse. I have no med insu and can not get care credit. it is very difficult financially just to go see a dr about all my problems and what is the cause. After figuring out myself that my problems are because of my leaking implants I am so upset at myself and for being mislead. i can not afford to have my implants removed. does any one know what the outcome might be leaving them in? if I try to detox my system maybe that would help me a little??? I to missed the dead line to file for the lawsuit. I don’t understand why there is a dead line anyway? this really sucks I just want to feel normal again and unfortunately for me I don’t see that happening. If I had only known all this would be happening to me 20 yrs ago when I got these stupid implants.
    what was I thinking???

    • bebe444girl said,

      August 23, 2013 at 8:10 am

      Don’t be hard on yourself, we were all mis-informed because the FDA is only out for greed. I know a few women who are stuck with their implants and yes detoxing is key. Even dr Kolb who Knows tons of women get sick from implants has them in herself. You have to live ‘extremely’ healthy. Remember your liver is struggling to filter all those toxins so you don’t want to add anymore in. Ex: no synthetic fragrances in your home, watch for pesticide use around you, body products should be natural, if you wouldn’t put it in your mouth, dont put it on your body, no processed food etc. maybe take milk thistle to keep your liver working well. Don’t lose hope. Do affirmations to stay positive. If you dwell on being sick, your body follows your mind. That’s one of the biggest things I’ve learned. Hang in there

      • Pam driver said,

        August 25, 2013 at 3:04 pm

        Do you know of a good detox I can do myself at home? You mentioned not to dwell on being sick. I really don’t. I do just the opposite becouse so many days I really do feel sick to my stomach a lot, headachs, joint pain especially in my ankle it hurts so bad to walk, muscle soreness, weight gain, memory problems, extremely bad skin problems, this stuff is in my eyes I can feel it makes my vision really blurred at times even with glasses on it really is scary what is happening to me. Yet I don’t say anything to anyone I get up every day go to work pretend I am just fine. I also am a caregiver to my husband he was is a horrible car accident suffered from major head trauma was going to now live in a nursing home. I just couldn’t leave him there so I brought him home to live with me he is paraplegic, he can not eat has to be fed through a tube in his stomach, he doesn’t talk at all but he is aware and will answer your questions by nodding his head he is incontinent, pretty much you have to do everything for him he has a lot of special needs. Dr’s told me in his condition he might live 4 yrs well It’s going to be 12 yrs ago and we just had our 28 yr wedding anniversary. So I cannot be sick He needs me I refuse to put him back in a nursing home i just cant. he will not last if i do that. I really don’t know what to do???? I need to be heathy again get my energy back??? Any suggestions At all would be very appreciated.

      • OneCarat said,

        August 31, 2013 at 10:20 am

        I have state medical insurance and they said if only one implant is ruptured, then only one would be removed.I had 40% leakage and 70% leakage on the other side, so thank God they were both removed. Always call on the resources available to you and one is 211 phone call in every state. It is FREE and they have valuable information and referrals. Also, I got a weight loss program for free that was denied at first. After 2 months I said, Hey! I am gonna do what it takes! There are programs available through hospitals that pay for the poor. I got “Free Bed Fund”to pay for what I needed. There are others, check your area hospitals. My weight is from medications and my liver is way out of whack. My triglycerides are 1,066 (should be under 150) I have dry eye and mouth and the dry mouth is causing major tooth decay, I need 2 root canals and 2 caps, if the damage is too great I will have to have them pulled. We suffer greatly! All for wanting to be/look “normal”. Doctors have lied and refuse to take any responsibility for their words, promises and actions. Advocate for yourself the best you can. I went to a meeting with the supervisor of the head of the customer relations dept. I brought my friend as a witness. Oh my goodness! His last words to me when he left the room were: “Why don’t you go back to Yale Hospital and get another set of implants with silicone poisoning!”

      • marie said,

        October 16, 2013 at 1:45 am

        are these doctors seriously trying to kill us? this is my only question after reading for hours and hours on the internet. I have about 7 specialists and seems like I would be better off seeing my cats vet. soon I will get these horrible implants out and I thank everyone for all their advice and support. at least now I know its the doctors that are insane, and not me.

    • Rachael Fielding said,

      August 23, 2013 at 6:23 pm

      Pam ~ I know, and I feel the same way. Why the heck do we have to get permission to file a law suit regarding this? If an illness or injury occurred in some other way one doesn’t need permission to file a suit. What a sad place this country has become. Our founding father’s – many of whom fought and gave their lives for freedom – would disgusted with how it has turned out. And the way the majority of the medical community denies silicone illness exists is appalling. Why is it breast implant manufacturers are protected, and we are not? How can they be allowed to continue poisioning consumers with their toxic devices?

  25. August 22, 2013 at 11:15 pm

    Please help me with my explantation surgery

    http://gfwd.at/1bZ164f

    Sincerely,
    Paulette Tyrrell RN

  26. Sandra said,

    August 26, 2013 at 8:55 pm

    Hi. I have been suffering on and off over the past 6 years or so with night sweats, low grade fevers, chills. Now I have an enlarged spleen and very sore top of feet and ankles and sore legs up to my knees. My CBC has been normal over the years except for some elevated inflammation and anemia. My Dr. is at her wits end as to what is wrong with me. The symptoms went away for the most part for a long time but now again these last 2 months I am getting worse daily. I have a bone marrow biopsy and aspiration as well as a cat scan set for the end of September and have been thinking that the results are going to come back with lymphoma but now having found this web site I am thinking it is very possible that I may have these symptoms from my saline implants that I had done about 20 years ago now. Has anyone else suffered from sore feet..not the bottom but the top and all the way up to the knees. The soreness may go away for a day but then its back just as quickly and as bad as before. I have fevers around 100 degrees daily and am often very tired. My doctor is on vacation for another week but I am going to see her about this possibility as soon as I can. After reading all of the horror stories of so many women with implant problems, I am going to get these things out as fast as I can, even if I do prove to have some other sinister disease. Thank you to all who have taken the time to write in and share your stories as they have helped me to see how seriously sick implants can make you. I had always thought I was safe from silicone issues cause I have saline implants. How foolish was I.

    • mamaz57k said,

      August 27, 2013 at 4:35 pm

      Yes, the top of my feet hurt also, especially after eating anything with gluten, carbs, sugar or alcohol. I had saline switched back in after removal of my silicone last year and am having these removed next month for goo. I started to feel better but once they started to encapsulate the RA came back with a vengenance. Make sure you file a complaint with the FDA and try to get a silicone poisoning test. Only way to eventually start a class action, which is what all of us on here should be doing.

      • Rachael said,

        August 28, 2013 at 10:01 pm

        Thank you for that bit of advice about filing a complaint with the FDA & the silicone poisioning serum lab test. No one ever suggested I consider doing either before stumbling upon this site. God bless you all. I pray that if we all stand strong united we will eventually prevail. Money can’t compensate for all that we’ve lost, but for those of us who’ve lost our ability to support ourselves & survive, it’s a start. Getting that crap off the market so others won’t be hurt by it seems impertative. Oh course, a little closer to home – some validation from the medical community recognizing silicone for the poision it is would be nice too.

      • Gabriella said,

        August 30, 2013 at 1:05 am

        hey ladies, so sad to hear of all your woes, I too am severely disabled with the symptoms of silicone poisoning but am pregnant so there is nothing I can do about these toxic bags right now.. :( roll on April where I think I am going to HAVE to come and see Susan Kolb as she is seemingly the only doctor I have met who will even admit to their being a disease let alone have any treatment ideas for it. I am in the UK, they avoid discussions on silicone poisoning like the plague as the NHS is implanted us all daily with silicone items like the Mirena coil, contraceptive implant etc, our doctors here are known as “pill pushers” meaning they get a kick back from the pharmas for selling their products… makes me sick. I am part of a campaign group on FB called PIP Action Campaign as most of us additionally have PIP implants.. are any of you ladies on FB and have seen The Silicone Implant Survivors group or any other groups? perhaps you should join and we should all join forces to bring a wholewide claim on this crap as I am FED UP of feeling like I am lying just because I have a disease that is too expensive to eradicate as they want to continue selling the product… makes me sick to my stomach! Anyway, find me on FB if you like, this group has been brilliant but I think it has dispanded a bit? all this info is very old? Susan Kolb posts updated info on these FB sites which might help you all. anyway, thanks again for helping me diagnose myself, first step to healing! xx

    • marie said,

      December 2, 2013 at 2:55 pm

      I get blisters on my hands and feet.. tops and bottoms. Im waiting for a double mastectomy and that is the only language I can speak with my idiots doctors as they do not even think that the word ‘silicone’ is part of earthly language… let alone being poisoned by 600 cc’s of it injected into my body. What is so hard for them to understand??

      Anyway, get your silicone out ASAP!, oh, and I had the lymph nodes removed to just to find out I didn’t have lymphoma, so don’t do that either. keep your healthy body parts that the doctors want to remove and get rid of the stuff they think is healthy for you! THE SILICONE!

  27. Sandra said,

    August 29, 2013 at 6:25 am

    Thank you for responding. I haven’t noticed if there is a correlation between what I eat and my sore feet. I just know that the pain often goes up through my ankles and to my knees. It feels like they are extremely bruised but don’t swell or show any change in colour. Are your feet sore from Rheumatoid Arthritis (RA?). I haven’t been diagnosed with anything. My doc thought I had Auto Immune disease but the Rheumatolagist said that I didn’t have that which I believe included testing for RA. I hope you feel better again soon. As far as the FDA, I live in Canada and I haven’t heard of any class actions that take place up here for this.

    • marie said,

      December 2, 2013 at 2:48 pm

      Hi Sandra, I am in Canada also. My plastic surgeon told me I had to get a double mastectomy to get rid of ALL the implant in my breasts. I agreed, because I’ve been too ill to fight about it. I’m almost 50 and had my kids, so I don’t mind loosing that extra weight on my chest either. But all the same, I’m pretty disgusted with the medical field on this issue. We are being lied to by professionals that supposedly took the Hippocratic oath to help people….
      technically I would be considered an extremely healthy person if not for this past few years of silicone poisoning, so kinda sad to think the medical system takes perfectly healthy people and slowly kills them. That’s a bit too Frankenstein for me!

      • Sandra said,

        December 4, 2013 at 5:10 pm

        Hi Marie,
        I know what you mean about doctors not supporting the idea that implants could be the problem to all of the illnesses that they cannot explain or give cause to in my body. Finally after every other possible test, including a CT scan and a bone marrow biopsy and aspiration (painful), I was referred to a plastic surgeon who agreed to remove my implants as a last resort to try to be healthy. He made it very clear to me however that there is no medical proof that any of my symptoms (including an enlarged spleen and low blood counts) have been caused by my implants of 22 years. I saw the plastic surgeon for a consultation and he had me in the next week for a full explant and capsulectomy. Thankfully all has gone well with the recovery. I am looking forward to starting the detox and moving forward to having a healthy body once again. I was surprised to get in so quickly but it was an answer to prayer….lots of prayers. Hope you are coping well. I don’t understand why you have to have a complete mastectomy!! That seems like overkill. Its enough to have to go through the explant. Did you consult with a few plastic surgeons about going that route?

      • marie said,

        December 4, 2013 at 8:07 pm

        Hi Sandra,
        I find it quite a coincidence that you and I both got in to have our silicone implants removed so quickly, even though all our medical issues were just ‘in our heads’… I think the medical system here knows there is a link, but are not at liberty to let the cat out of the bag. The doctors are keeping mute about this issue, its obvious.

        Today I had a small break through! I saw a woman doctor at a clinic close by that specializes in women’s health. (not a gynob, but a gp that sees only women) She admitted to me today that its all “as if the silicone were toxic to my body – wink wink” and supported my decision to remove the silicone and feels also that it will help my digressing health. That was a first for me!

        That is all I needed to hear. The doctors know there is a link between silicone and autoimmune diseases, but money speaks louder to them, and women are disposable in their eyes.

        I’m not really shocked. I have learned through the years that silicone implanted women are medical orphans… AND doctors wont be able to ignore this epidemic forever… some are already wondering what the future will be like for an entire generation of women getting implants.

        I remember how naïve I once was. I trusted all the doctors for many years, but at age 50 I have seen enough doctors make enough uncaring mistakes to know that they really don’t care about the average person – and just care about the money they are getting. sad, I know, but true.

        I actually have witnessed my cat’s vet feel more empathy for my cat’s health than my doctors for me! LOL!

        Yes… a double mastectomy is extreme. I have four reasons for going this route.
        1) I’m not getting new implants put in, so my boobs will be limp and saggy and lifeless after the removal
        2) the recovery time will be dramatically less because of the minimal straight lines cut into the tissue
        3) its the best way to be sure everything is removed and the tissue is free of any toxic waste
        4) I have breast fed all my kids and am not dependant on my breasts anymore, if I were young and single, it would be a different story.

        So I hope this information helps a lot of women to understand that doctors are not there to improve your life, but to make some money and take their families on extravagant vacations. I might sound disgusted and jaded, but I am ready to move on and take my health into my own hands. If I ever see a doctor again it will be too soon.

      • Anita said,

        December 5, 2013 at 8:23 am

        Please rethink your option is to have a double mastectomy. I have (Dow)silicone implants since 1985. I have been on social security for 10 years, treatment for chronic Lyme. The implants were “suspicious” when I had my yearly mamogram which led to a MRI to confirm they were ruptured. My surgeon in New York City is very well respected for her explanations and will be removing the implants. She has told me some of the silicone has leaked down into the rib cage, but she can, and will go in and clean out what she can safely remove. I will also have an uplift done at the same time. I’m not a doctor, however, I think a DM is so radical. My total cost will be about $10,000. Perhaps there is an option to come to the States, get second, third opinions thru phone/ Skype, financing options are available if you can’t pay upfront. I wish you all the best in your decision, if I can be of any help with referrals please feel free to contact me. PS surgery will be soon after the new year :))))

      • marie said,

        December 5, 2013 at 6:52 pm

        I thank you for your responses. I wish I could live to see the day that silicone becomes a toxic substance and illegal to insert into a person’s body. But evolution is a very slow and painful thing.

        As of Tuesday December 10, I will have had my implants for 7 years, 5 months, and 3 days. The last 18 months have been torture.

        The plastic surgeon assured me that he would clean the inside out of any silicone/capsule/effected tissue. And then I guess that would be all that we can hope for. I’ll be in god’s hands after that point.

        Yesterday I got the results back from a total organ ultrasound. kidneys, liver, spleen are all good and functioning perfectly. I believe that the silicone can travel around the body too via the lymph system. But let me tell you about breakthrough #2!!

        I went in for my pre-surgery admission, and the nurse doing my workup told me that all the women she sees coming in to get their implants out feel better immediately after surgery. their autoimmune difficulties continue to subside over time thereafter! I thanked her for her information and told her I could never get a doctor to say that. she said a doctor would never say that.

        So we must all trust our instincts – and always ask a nurse for her opinion before we ask a doctor!! The nurses work on the front line and see it ALL! I have heard many a nurses story about problems doctors have created in the hospital etc.

        well, live and learn.

      • bebe444girl said,

        December 5, 2013 at 10:09 pm

        Thank you Marie (and all you beautiful ladies) for sharing your journeys. Marie, I pray that an army of angels will surround you during your surgery and that everything will go perfectly. An early congrats that you’ll be getting all those toxins out and begin healing. I’m glad your organs came back in the normal range but its infuriating that silicone does break down and travel thru our bodies making all systems go haywire but they just don’t ‘get it’. Implants will one day be a black market item, but not in our lifetimes unfortunately. I can only imagine sometime in the distant future people will say, ‘ can you believe people paid to surgically put poison in their bodies??!’
        Remember lots of rest, purified water and organic veggies (cooked not raw as raw is too hard on your digestion when your body is trying to heal). If you can make bone broth and have that as another beverage.

      • Sandra said,

        December 6, 2013 at 8:09 pm

        Hi Maria, I was in to see my plastic surgeon today for a follow up of my explants from last week. Everything is healing very nicely. My breasts look nasty but I am so happy that I had the explant. It will take a few weeks for pathology to come back with any test results from the implants or surrounding tissue. My surgeon did a great job and even though he told me that all of my illnesses are not likely from the implants he does want me to keep him informed as to my health as he is interested to know if the explant does change my current health problems. I was happy to hear that he was willing to follow up with knowing my results. I as so thankful that we are covered for explants through the government health care system. I cant believe how expensive I am reading that explants are in the US. All the best to you on Tuesday. I hope you have loved ones around to help out for the following week or more after surgery. My family have been a huge support and I am very thankful for them. Now I need to start looking at what I am going to go with for detoxing. My spleen was larger again today (it goes up and down in size) and my feet are paining so I know the journey has just begin with the explants and that I have work to do with detoxing.

      • marie said,

        December 7, 2013 at 1:12 am

        keep chin up Sandra! and this is another breakthrough!! Your doctor has not kicked you out the door! keep him informed. I plan on keeping all you ladies informed of my development after surgery.

        my expectations are that my body will take another kick at the cat…maybe a few times even, then maybe begin to accept the removal.
        Then detox
        then to keep my doctors very informed about my recovery. I will be keeping a diary of it and letting all you ladies here know of my progress.
        I consider you all my family, we are sisters, in this together…

      • Sandra said,

        December 9, 2013 at 8:01 pm

        Hi Maria,
        Hope you are well rested and feeling good for your surgery tomorrow. I know its an exciting time but also can be stressful at the same time. I look forward to hearing from you once you are able and feel up to it. My healing has gone very well still. My spleen is larger again and my feet are paining so I look forward to detox time. Not sure what or how I’m going to do for that yet. I will be thinking of you and praying for you.
        All the best. Sandra

      • marie said,

        December 10, 2013 at 11:27 pm

        Sandra! Its the night of my surgery… It went splendidly!!! I feel great. Immediately my blisters on my hands and feet are subsiding, but what I cannot find words to describe is how the ‘brain fog’ has disappeared! I have a brain again, and I already hear myself planning going to a parachute jumping school! (I’ve been jumping tandemly for years before I got sick, not to mention running marathons too before I got sick)

        Its ALL TRUE!!! I will begin a massive detox tomorrow. tonight I started by stopping by the grocery store tonight and picking up 4 bunches of juicy sweet organic carrots and ate half of them. (I was a bit hungry LOL) tomorrow, I fire up my juicer and get the green stuff going. I have already begun vegan protein shakes with psyllium fiber include and ground flax grain and fruits since last week, in order to get ready for the surgery, and It has made a big difference. The psyllium fiber absorbs a hundred per cent its weight in body toxins, might be as good as bentonite. But talk about getting “regular”… wow…

        My plastic surgeon left me a little surprize. I thought I was going to be totally flat chested, but when I woke up I found I have two small little perky breasts LOL! no nipple, but very cute breasts! And I LOVE THEM!! I GUESS LIKE AN A CUP OR B CUP OR SOMETHING.

        The healing is not in my head, just like the doctors said the illness was in my head.

        ANYONE READING THIS – GET THE SILICONE OUT!!!! NOW!!!!!

        MARIE XOXOXOOXOXOXOXOXOXOX
        THANK YOU FOR THE PRAYERS, NOW I PRAY FOR EVERYONE ON HERE EVERY DAY…BECAUSE THEY COME TRUE!

      • Sandra said,

        December 11, 2013 at 1:06 pm

        Hi Marie,
        So happy to hear that all went well and you sound so pleased. It is exciting to have little boobies again….lol….I would have never thought so many years ago that I would love them! Oh if only I didn’t buy into this world’s idea of what beauty and sexy is in a woman. I have more energy already. I actually feel like starting to jog once again. I haven’t felt any energy to go jogging in literally YEARS!!! Definitely notice a difference in my body almost immediately as well. I haven’t started the detox yet but I will be looking and happy for suggestions. My feet are still acting up and so is my spleen but I’m sure it will continue until I get the toxins out. Look forward to more of your updates. Don’t forget to not push it too hard and rest as much as you possibly can. Talk to you soon.

  28. Alida J said,

    September 8, 2013 at 2:04 am

    Hallo, all you ladies. I’m from South Africa. I had my silicone implants in 2000, for the past 4 years I am in constant pain. I were diagnosed with RA and follow an Acid free diet. I want to get this poison out of my body. Where must I go, to my GP or will a Plastic surgeon help me?

  29. Laura said,

    October 1, 2013 at 6:27 pm

    My name is Laura. I had the Mirena for almost five years and had it removed 2 months ago due to a bacterial infection. Since I’ve had it removed I’ve been feeling horrible. It started with this awful taste in my mouth then indigestion with intestinal spasms whenever I eat anything. Thought it was acid reflux but its not. Started feeling foggy, fatigue, off balance. I went to my Pcp and she sent me for lab work. Everything was fine except my liver enzymes were increases so then I went for a CT scan of my liver and it was normal. Now I have more symptoms of dizziness, nausea, numbness, burning eyes, dry mouth, memory loss and confusion. I went back to my PCP she ordered more lab work. The lab work was normal and now I have an appointment with a neurologist Thursday. After reading this blog I am convinced I have silicone poisoning and I will ask the neurologist to do a silicone test. Thank you all for sharing your stories. I am taking one day at a time and now I will try to do the detoxing. I hope and pray we all get back to our healthy selves soon!

    • marie said,

      December 5, 2013 at 11:59 pm

      Hi Laura, I got a question:

      does the mirena contain a hormone called progesterone? removing the device may also cause your body to respond to the missing hormone it once fed your body.

      Also want to mention that up in Canada, you ask for a silicone test, they look at you like you just turned your head around 360 degrees. so you are lucky in the states you have tests and the FDA to turn to. take full advantage of that. power in numbers!!!

  30. OneCarat said,

    November 2, 2013 at 2:23 pm

    Hello fellow sufferers from the wall of denial & ignorance against us,

    I just found out that in the state of CT a patient can make a complaint against a doctor NO MATTER HOW LONG IT HAS BEEN since the offense, because there is no statute of limitation like in a law suit. The complaint will be taken seriously and thoroughly investigated, they say. They will not take, “I don’t recall” as a final answer. The doctor can be sanctioned and/or fined. Check out your state Public Health Dept.

    My surgeon included a “lifetime guarantee” (verbally).
    When he removed my first set of botched silicone implants (from another surgeon) that were put in a 4 inch cut under my breasts, he decided to give me a new set of scars around my nipples without my consent. All when I was knocked out! Who does that?? More than 30 years later I STILL have odd sensations with my nipples. I am 59 now. In my early twenties how could I ever consider suing a rich doctor about my nipples! Shame & embarrassment kept me from a lawsuit.

    I am taking that detoxing clay, BENONITE from Whole Foods. My hair has thinned considerably so I started taking BIOTIN, a B vitamin for hair. We shall see.

    It has been difficult to get up after this knock-out punch. I fear it is a longer road of recovery than I have to live. I am doing my best. I am still seeking good health care pertaining to silicone poisoning and run across some strange looks on doctors’ faces when I bring it up. It is very frustrating & I have been looking for awhile. Most doctors now are like most lawyers…in it for the money & lack heart. What if it were one of their loved ones or better still, what if it were they, themselves.

    God help us all. God speed for all us who suffer from this. May we all make headway through this denial, ignorance, stubbornness & lies.
    God Bless,
    OneCarat

    • mamaz57 said,

      November 2, 2013 at 3:15 pm

      Just got word of an attorney who is going to try and help us. Ladies, you might Carolynn Salzmann, in Orlando, Fla. Telephone: 407.423.4560 Check out her site and consider sending an email so her business phone isn’t ringing off the hook.

    • marie said,

      December 2, 2013 at 3:01 pm

      k, I’m from Canada, but my implants are from a company in the USA called (of all things) MENTOR. And I would love to sue their guts out! Do I still file a complaint with the FDA in the US because its an American company?

    • marie said,

      December 10, 2013 at 11:32 pm

      HI! here is a copy of the letter I just printed for Sandra tonight…

      This is amazing!

      Sandra! Its the night of my surgery… It went splendidly!!! I feel great. Immediately my blisters on my hands and feet are subsiding, but what I cannot find words to describe is how the ‘brain fog’ has disappeared! I have a brain again, and I already hear myself planning going to a parachute jumping school! (I’ve been jumping tandemly for years before I got sick, not to mention running marathons too before I got sick)

      Its ALL TRUE!!! I will begin a massive detox tomorrow. tonight I started by stopping by the grocery store tonight and picking up 4 bunches of juicy sweet organic carrots and ate half of them. (I was a bit hungry LOL) tomorrow, I fire up my juicer and get the green stuff going. I have already begun vegan protein shakes with psyllium fiber include and ground flax grain and fruits since last week, in order to get ready for the surgery, and It has made a big difference. The psyllium fiber absorbs a hundred per cent its weight in body toxins, might be as good as bentonite. But talk about getting “regular”… wow…

      My plastic surgeon left me a little surprize. I thought I was going to be totally flat chested, but when I woke up I found I have two small little perky breasts LOL! no nipple, but very cute breasts! And I LOVE THEM!! I GUESS LIKE AN A CUP OR B CUP OR SOMETHING.

      The healing is not in my head, just like the doctors said the illness was in my head.

      ANYONE READING THIS – GET THE SILICONE OUT!!!! NOW!!!!!

      MARIE XOXOXOOXOXOXOXOXOXOX
      THANK YOU FOR THE PRAYERS, NOW I PRAY FOR EVERYONE ON HERE EVERY DAY…BECAUSE THEY COME TRUE

  31. mamaz57 said,

    November 2, 2013 at 3:15 pm

    Also, everyone make sure they file complaints with FDA, as that is the only way an eventual class action will transpire.

  32. lisa said,

    December 1, 2013 at 6:22 pm

    has anyone experienced long term hair loss?
    thanks
    Lisa

    • lisa said,

      December 1, 2013 at 6:22 pm

      I Live in ct

      • Anita said,

        December 2, 2013 at 6:23 am

        Hi Lisa, I live in CT also and yes I just went through a shedding. Loss a lot of hair. Still waiting for surgery. Using Dr. Christina Ahn in NYC should be done after first of the year. Btw, the hair is starting to grow back in. I have silicone (Dow ) 1984 ruptured. Been very sick for 10 years+ doctors were treating me for chronic Lyme.

      • marie said,

        December 2, 2013 at 2:38 pm

        It continues to baffle me how doctors just NEED to ignore this issue. Anyway, I’m on a wait list here in Canada for a full double mastectomy. I’ve decided that it was time to rid myself of this major silicone problem. I have been sick for 3 years and not until I agreed to a mastectomy, that my doctors even would decide to consider my problems. I have basically ALL the symptoms on all the lists I’ve read this past year. When I mention it to any one of my 6 or 7 specialists and GPs, they look at me like a little alien craft just landed on my head… well, goodbye boobs – was nice knowing you, but I’m confident that my health will lean back towards getting normal again after the surgery. I kinda am looking forward to getting that weight of my chest anyway…

      • OneCarat said,

        December 4, 2013 at 11:52 pm

        I don’t know that a double mastectomy will solve your problems. The point of silicone poison is that it TRAVELS to major organs & causes a wide variety of symptoms all over the body. I had my ruptured implants taken out with 40% leakage on one side & 70% leakage on the other (that’s a lot!). After the explantation I freaked out & went to a breast specialist who told me to get the silicone out was like scraping super glue with a scalpel; she would have to break my breast bone and dig for many hours and still not remove it all, I would be concave & deformed. She wouldn’t do it. I have had liver problems, hair loss, I’m sure I have Sjogren’s disease and a host of other things, especially fatigue. Here is the thing: I wanted my first doctor, a plastic surgeon, to give me a double mastectomy, but he wouldn’t, & I am glad. The problem isn’t my natural breast tissue, I have some under my armpit (MRI), but the damage has been happening for years without me knowing it. I am glad I still have my natural breasts. I think you may be sorry to suffer such a loss unnecessarily. I do know how you feel because I was at that crossroad myself. Please be cautious & BE SURE. If you think you can cut your breasts off then you cut the problem out, BUT YOU DON’T, I am so sorry to say. Be informed. I suffer with this daily, I am so tired of this, too. My best to you and may God bless whatever decision you make. We’ve all been duped before, let us speak the truth and help one another with the pain we have all suffered-and continue to suffer. May we all join together & find the answers we are looking for. God bless.

      • OneCarat said,

        December 3, 2013 at 12:33 am

        I have had long term hair loss for 5 months. I am 59 and I live in CT. I researched the problem and found an answer. Biotin, a B vitamin is a good supplement to strengthen your hair. Take Biotin with a B-complex vitamin to keep your “B” in balance. There is also a Biotin shampoo available. I have had good results with this combo, a lot less hair loss!

    • marie said,

      December 18, 2013 at 1:00 pm

      k, girls, if anyone is still reading these… Its been a week since my double mastectomy and my life is almost basically totally back to normal. The mastectomy was not a big deal. It was relatively easy. The surgery went really well. No pain, as many drugs as I wanted, and great care! Im healing well, and I cant help but think it was all due to the prayers that people had made on my behalf for surgery day. I am indebted to everyone for their support.

      I don’t have nipples, but I have some perky little A cups and am enjoying not having the weight issue any longer also.

      I am 100% pleased with the results, the operation, and the fact that I really see huge results!

      Here in Canada, the tissue is immediately sent to a lab and tested for any cancer cells.

      My plastic surgeon said the silicone and capsule are all gone. I even see where he went a little further in one breast to take out creeping silicone.

      Two days after the surgery, my hands, feet and face all blew up, swelled, very red and painful. Then it immediately subsided, and took any remaining blisters, or blue marks, and swelling, pain etc with it. Anything associated with all the issues I had before subsided with that massive attack. Im guessing that my immune system cleaned up. The brain fog is noticeably GONE! That’s the one that surprized me the most. It was also the scariest symptom. headaches and problems with the head are all gone. I am NOT KIDDING!

      I have lots of energy even tho I am still healing, I have more energy than ever, for several years!

      I will be getting the operative report for my files, and I will be getting the lab results. I believe I added 20 years to my life. If I ever see or read silicone again, it will be too soon. I am clearly an advocate of illegalizing silicone implants or any sort. They are a bio hazardous mistake the medical system is making every day.

      When I was sitting in the plastic surgeons office signing papers for my mastectomy, I saw a younger girl in there getting excited about new boobs. I kinda rained on her parade. Im not going to apologise for telling her what me and millions of women go thru. Not sure if she went thru with it or not.

      Im actually thinking more about getting a job and travelling again. I haven’t been in that head space for over 3 years.

      My detox right now consists of psyllium, a juicer, just basically my already healthy living and lifestyle. (minus the silicone!) When Im ready Im going to add some more exercise, so I guess Im in gods hands now. If this information helps at least one other person, then I will be happy.

  33. Elena said,

    December 16, 2013 at 4:05 pm

    Hi, I wrote a comment here the third of desember the year 2011. I had just found out then that I was sick from my breast implants. I did not see your answer until now so I dont know if they did it right (the removal). My silicone implants where removed 11 des 2011. My health improved about 80%. But I´m still sick, I´m still taking painkillers every single day, two three times a day.

    I found out that I had the french PIP implants. I absolutley do not believe that it is not poison like they say, how can it not be. Four years in prison is not enough for my life!!

    Do I ever get better, is anyone that can tell me that? Is there anything I can do? I still have silicone in my neck and in my glands under my arms. One doctor told me to let surgeon remove the glands but the other doctor says no, dont remove your glands. I dont know what to do.

    I’m afraid that this will have sirius affect on my health later on.

    • marie said,

      December 18, 2013 at 11:54 pm

      I hear ya!

      Last January, before I dummied up to knowing it was the implants making me sick, a doctor told me to take out my lymph gland under my armpit. he thought it was lymphoma and needed a lymph node to test. (they did a biopsy and it came back uncertain,now I realize it probably came back full of silicone!) then came the operation.. so I lost a lymph node last January! and those lymph nodes were the only things holding back all the silicone, like small dams.

      Do doctors really not know what the lymph nodes do?

      well, now, its that arm, and that side that is really a bigger problem, even now with the implants all gone. the arm on that side still has rash. and there is still pain. obviously more silicone got past the removed lymph node. doctors are so retarded!

      IF I HAD NOT FOUND THIS SITE WHEN I DID LAST SUMMER, I WOULD STILL BE GETTING PIECES OF BODY TAKEN FROM ME BY DOCTORS! (or should I say… butchers!) I traded my boobs for my life and a large piece of wisdom. I am ok with that, but where does it stop?

      The network of women coming together IS saving people, because it saved my life. we are still more wise than any doctor. but brainwashing can easily affect even the most intelligent person. we need this genocide of women’s bodies to stop.

      I would love to see a celebrity in Hollywood take up this cause. Anyone see Pamela Anderson lately? She has tiny boobs!! But she says nothing about it. she is still trying to save animals lives… she should try saving people!

      so you were explanted two years ago, practically to the day that I got explanted. how has your two years been? and how long did you have implants?

      marie

  34. December 18, 2013 at 1:13 pm

    […] December 18, 2013 at 1:00 pm […]

  35. Elena said,

    January 3, 2014 at 1:26 pm

    Hi Marie, I had breast implants in 2002. I did not get sick until june 2009. The first day after the implants where removed I did not belive how much better I felt (removed 11 dec 2011) but I never got 100% better. I am still taking painkillers every morning so I can go out of my bed. Its nothing though compare to how sick I was when I had the poision implants.

    May I ask how you are doing in your arms after the lymph removal? Do you think it was worth it? I am thinking about removing all of my lympnotes under my right arm. There is nothing I can do about the silicon in my neck, it is to dangerus to remove it.

  36. OneCarat said,

    January 4, 2014 at 12:22 pm

    I have been looking for a specialist in my state (CT) to deal with all my symptoms concerning silicone poisoning, which are many. All my skin (except my face) is spotty and itchy, I have substantial hair loss, headaches, dry eyes, dry mouth, nausea, liver test is whack, obscenely high triglycerides, muscle aches and pains, tooth decay, SEVERE exhaustion and no energy. I have asked every doctor I have been to and no one knows anything! I even when up the “food chain” at my hospital and was treated with contempt. The head of the department of “Patient Relations” last words to me were, “Why don’t you go back to Yale (hospital) and get yourself 2 more silicone poisoned implants?!” Good thing I had my best friend with me as a witness. I need a doctor who believes me and can tell me how to GET THIS SILICONE OUT!! I can talk about symptoms all day; I need a doctor in the state of Connecticut. Can someone please help me with that information?

    • Anita said,

      January 4, 2014 at 1:10 pm

      Hi Onecarat, I live in CT (fairfield county) also. I don’t know if we r allowed to leave Dr.’s names. You can email me at afrigs@optonline.net. I’m scheduled to have my implants removed on Jan. 8th. I was going to use a surgeon in NYC but she wants me to weigh between 150/ 155. Well, I just went to weight watchers, I’ m 5 lbs away, but that could take another month or two so I’m flying to Ohio to Dr. F.

      I will be using a Doctor in NYC who has a great reputation for helping women who suffer from the negative side effects of breast implants. He said he can get me 75% better, I’ll never be 100% but that’s ok, 75% is 75% better than what I am now. I would be happy to share his contact information with you.

      • OneCarat said,

        January 4, 2014 at 11:02 pm

        My implants were put in 1980 and removed in 2009. The leakage of silicone was 40% and 70%. As I said, I am in CT and need a doctor in CT. I cannot afford to fly from state to state. I have seen doctors names written on this site. Why not? It’s not liable. Things should be in the light for healing, there are no secrets here; there shouldn’t be. I do not need to remove implants, if I didn’t make that clear. I need help with the residual silicone within my body. I need to detox and deal with the symptoms (many) that I have mentioned. I have Medicare insurance because of my disability, not my age. If you reread my thread you will see I stated clearly that I need a doctor IN CT.

      • Anita said,

        January 5, 2014 at 6:11 am

        Sorry for the miscommunication. I am also on Medicare and medicade (CT). The Doctor I will be using for detox is Dr. Steven Meed. He is a rheumatologist, specializing in chronic fatigue, Lyme, fibromyalgia. He also has treated hundreds of women suffering from the ill effects of silicone. I have a rheumatologist in CT who is great. But was honest with me and said she has no experience with detox. Good luck finding someone in CT, sorry I can’t help, but Dr. Meed accepts Medicare and the 20% I pay out of pocket is less than 25$. One more thought, you might want to contact university of Bridgeport . They have a clinic open to the public associated with their Naturopatic program, worth a call to see if they can help. Best of luck to you.

      • bebe444girl said,

        January 8, 2014 at 6:42 pm

        Yes please ladies ! share any and all good doctors who are willing to address and help women suffering from implant illness. Holistic/ medical. That’s what this site is for- to help each other openly. We are spread world-wide. Healing and blessings to all of you.

    • mamaz57k said,

      January 4, 2014 at 11:15 pm

      sounds like you have Sjogrins Sydrome, if so, you may have a case on your hands. Dry mouth and eyes are the hallmark of SS. Good luck.

      • OneCarat said,

        January 4, 2014 at 11:23 pm

        I know all that, tell me what I don’t know, the name of a doctor in CT that helps women with a variety of symptoms from residual silicone. Someone mentioned reporting to the FDA? Also, a suggestion was made to contact the local news who reported on this subject over the years to see if they have names of doctors in their records.

      • mamaz57k said,

        January 4, 2014 at 11:48 pm

        Can’t help out with a doctor; however, I can make a suggestion of contacting Carolynn Salzmann in Fla as she mentioned taking cases with anybody with SS. I have contacted the FDA twice since 2010, first time was when I had problems, 2nd when I had silicone poison test come back positive. Seems as though they’re right in bed with big pharma also but I think if enough folks did contact it would eventually have to change the future of silicone on the market. I had mine removed 4 months ago but feel worse then ever now but feel it’s a result from all the crap the doctors put me on. I look for new stuff on the net monthly to see what new stuff has popped up so if I hear anything new Ill post.

      • OneCarat said,

        January 4, 2014 at 11:57 pm

        Thank you, that is helpful to me. The frightening thing is symptoms popped up when my implants leaked and I had them removed. It has only gotten worse since 2009. What’s next in line for my ill health? It’s scary. Before this poisoning I was always healthy. I don’t want to be sick and I am not a hypochondriac! I understand what you said about FDA and big pharma-there is no surprise there. I heard of Carolyn Salzmann in FL and tried to contact her once. I’ll try again. Thanks again.

      • mamaz57 said,

        January 5, 2014 at 12:18 am

        I can relate, as I had them fully removed and am now worse then ever. Thankfully my husband supports me but the rest of my family thinks I’m a kook, along with most doctors. Less than 5 years ago I was extremely healthy, energetic and vibrant. Now, I am in so much pain I can barely sleep. My 5 year old son is what keeps me going, otherwise there is no way I could continue like this, especially with the progression. I spoke with Carolynn and she was very sincere and wanted to help but was skeptical because other lawyers weren’t hopping on the bandwagon (I have contacted almost 200 attorneys). My response was she could be the pioneer of the millenium but I havent heard back. She did mention SS on her blog in November though and mentioned to contact her. Also check out these doctors sites and maybe you can glean something from them.Dr. Arthur Brawer
        Pierre Blais
        Susan Kolb

      • marie said,

        January 5, 2014 at 12:21 am

        …when you got your implants removed did you have the capsules removed as well? was it capsulectomy? enbloc? mastectomy? did you get the operative report? any descriptions of what surgery they performed? just wondering if they left something in there that needs to be removed still…

        we women need to bypass all the doctors and head straight to the politicians! there are already doctors out there that can confirm all these complaints. we need the politicians to start listening and acting on this. if a doctor cant fix something he is in his/her right to turn the patient away. politicians can change laws, doctors cant.

        in the meantime the rest of us just suffer, BUT we can save the next generation from being poisoned and ignored like an annoyance.

        anyone out there that wants to take it to the next stage? im game!

      • mamaz57 said,

        January 5, 2014 at 12:32 am

        It was capsulectomy. What is really weird is exactly a year before I switched back to saline and within months started to feel better and weaned off the Celebrex and Vicodin. Within a week of them encapsulating 7 months later, the RA was back with a vengence. I had them removed for good in Sept and was still in pain and my doctor put me on Methotrexate (even though I told him I didnt want it as I think it was the source of my hip fracture 3 years ago) he persisted that is would help prevent further damage of my joints. My knees now feel they are bone on bone in 3 months. I’m convinced the majority of medical profession is not to be trusted. I’m up for your plan but I’m very cynical at this point and politicians don’t seem to typically take up a cause unless there is a huge majority. These do need to be off the market so I am willing to try. I did contact ERin Brokavich several times but never heard back……

      • marie said,

        January 5, 2014 at 2:35 am

        wow, that’s awesome! Erin Brockovich nice, but my guess that she being a beauty queen this might not be her cup of tea. I wouldn’t doubt that she even has implants. But this is good to hear.

        And when you say there needs to be a majority, I think there is a majority but women approach this like they are a victim in a rape case. And from what I hear women on the stand at these trials get interrogated like a rape victim. They get inundated with personal questions that aren’t even related to the implants, but rather they try to make the woman feel inferior and strip away her dignity to win the case. many women have opted to take the cash and settle out of court. which might be fine monetarily, but still leaves a problem… implants are still legal and available.

        I am currently communicating with Adella Mathews, from British Columbia Canada. She is a real veteran in this subject and has founded the site siliconeinfo.com. She is an advocate of building support groups. This does two big things. one-it gives women the place they need to go to feel like they are heard, and two-it builds momentum to be heard as a group, and not singularly.

        I live in a small town, and a silicone support group will go over like a lead balloon here, but the cities really need to see more of these types of groups. god only knows there are plenty of all kinds of support groups out there, but yet I’ve never heard of anything but these blogs to vent and communicate and support one another. I think women need much more. women tend to be troopers and suffer in silence. history is wrought with examples of women dying before making waves and changing the system.

        if you can create a support group for women in your area, you will be doing yourself a favor and other women as well. maybe then this can lead to political acknowledgment.

        this is the stuff that I sit and think about at 3 am when I am worrying about dying from the effects of silicone poisoning and leaving my 11 year old daughter orphaned

      • Rhonda said,

        January 5, 2014 at 8:39 am

        Where do I get a silicone poisoning test done? ( midwest) Is it just a blood test?

      • bebe444girl said,

        January 8, 2014 at 6:28 pm

        Lana’s site has a ton of info on this….hope it helps!

        https://sites.google.com/site/siliconehypersensitivity/home/request-the-test

      • mamaz57k said,

        January 8, 2014 at 6:28 pm

        autoimmune technologies in Louisiana. $150- and that was the cheapest I could find a few years ago. My gp had to order.

  37. Elena said,

    January 9, 2014 at 11:19 am

    Has anyone removed their lymphnotes under their arm, did you feel better afterwards?? I think the capsules where not removed when I had the explant. Do I need to remove them? Thanks Elena

    • Rhonda said,

      January 9, 2014 at 2:34 pm

      I believe you should have them removed. The lymphnotes I would think twice. I had some removed after my double mastectomy. My left breast is the one that had cancer and they removed some. Later I developed lymphedema, which can last forever.

    • Anita said,

      January 9, 2014 at 6:03 pm

      Hi Elena, I just had my implants removed yesterday. I live in CT. But I traveled to Ohio to have Dr. Lu-jean Feng perform the surgery. I was originally going to have Dr. Christina Ahn do the surgery but she was insistent I weigh 150/155 and I have leukopenia ( low white blood cells). She would not operate on me if I had neupogen in my system. Long story short, I had enough of being sick and a surgeon waiting for perfection before she would operate. I weighed in at 159lbs for my surgery, everything went extremely well. Dr. Feng sent me to Dr. Khan here in Ohio, for an ultra sound mapping. He was able to pinpoint exact location where the silicone was in my chest, sent results to Dr.Feng and a copy to me before I left. Drove 5 miles to see Dr. Feng for a 3 hour appointment to discuss my history and surgery, q&a. It is NOT advised by both Dr. Feng and Dr. Ahn to remove lymph nodes, as Rhonda said, causes more problems. It is important to have an enbloc procedure done and use a surgeon who is well experienced in removing all that he or she can. Dr. Feng uses nerve block, not traditional methods,( gas) for going under. It was amazing! I woke up clear headed, feeling great, came back to hotel made some phone calls and sent off some emails. I was in surgery a little over 4 hours. Anyone out there reading this, if you are looking for a surgeon, I highly recommend Dr. Feng. She is kind, compassionate, has a wonderful staff, her own operating facility and not to mention a brilliant , skillful and beautiful surgeon. I’m recuperating rather quickly, hardly any output in my drains so they might remove them tomorrow. My Dow silicone implants were implanted in 1984, I have been sick over 10 years. I look forward to getting my health back and sharing any knowledge I have regarding what I have been learning along the way. Best of luck to all and don’t hesitate to contact me if I can be of help. Anita

      • Rhonda said,

        January 9, 2014 at 6:37 pm

        Thank you. That was very helpful for many, I’m sure. Very interesting.

      • January 9, 2014 at 9:37 pm

        Hi Anita, Its so great to hear about your explant. I had mine exactly one month ago. My health improved immediately (just as all the nurses told me it would) but one month later, I have a chemical taste in my mouth. Not sure why, but I told myself not to expect much for the first year and just to keep a diary.

        I still have my specialists. I saw my GYNOB today, and will again next week to follow up and monitor my reproductive organs and hormones. I see my rheumatologist, internist, and PS next month for much of the same.

        All in all, I really love my new small boobs. I have no idea why I ever wanted large breasts! My back and shoulders no longer have to carry all that weight! How awesome!

        So keep me (us) posted on your recovery. I for one, am interested how things go for you!
        Marie

      • Anita said,

        January 16, 2014 at 6:39 am

        Thank you Marie for your concern. One week ago yesterday I had the surgery. The only thing I have is a terrible rash pre-surgery and now compounded from the surgical dressings. I am able to see the results of the uplift, they look great. It’s amazing how much trimmer we look when we are not carrying those toxic bags in front of us. I look forward to the next chapter of detoxing and feeling the best that I can. I will keep you posted. You are doing the right thing by keeping a dairy. I’m sure our bodies will go through some crazy times during the detox process. The one thing we all have is a voice. I cannot begin to tell you how many young girls I have told my story to who were thinking about getting implants. My advice is fat transfer, it’s your own tissue, your body won’t reject it. All these PS who are doing a hard sell for implants will soon be spinning it around and suggest fat transfers, it’s just a matter of time.

  38. Alison Miller said,

    January 15, 2014 at 7:31 am

    How do I find a doctor in my area that can assist me in this process?

    • bebe444girl said,

      January 16, 2014 at 6:41 pm

      Oh wow. Glad you got what you can out-sorry to hear you have residual floating in your body :(. Hopefully someone near Tampa can give a good recommendation for a good holistic dr… In the meantime, look into liquid needles. There’s a soak to help detox silicone.

      • Alison Miller said,

        January 17, 2014 at 4:35 am

        Thank you for responding:) I DID get that actually!! I just haven’t used it…have you personally tried it?

      • bebe444girl said,

        January 17, 2014 at 10:21 pm

        I haven’t tried it! When I’m completely done breast feeding I was going to try the anti fungal one. I do remember a woman who did the silicone one said she had gummy stuff on the back of her head afterward…not sure if its what was pulled out or just the bath water made it gummy feeling. If you do try please let me know how it works for you. I mean, if they can’t surgically remove it from your body the only way out seems thru the skin doesn’t it??

      • Alison Miller said,

        January 18, 2014 at 4:25 am

        Yes I will let you know for sure. I am seeing a new naturopath this coming week who has dealt with this before so I’m going to bring that in to her :)

  39. Alison Miller said,

    January 15, 2014 at 7:32 am

    How do I find a doctor in my area who can assist me in this process?

    • bebe444girl said,

      January 15, 2014 at 10:14 pm

      If you can’t make it to dr Kolb in Atlanta or dr Feng in Ohio, your best bet is to go to your local plastic surgeons and basically interview them. Tell them you want a full capsulectomy and ask if they will remove en bloc (fully intact). You don’t want to chance any more micro organisms getting into your body. Also the more we inform the doctors the better so I encourage women who have had good luck with doctors who listen and don’t make you feel like you’re a crazy hypochondriac to post their name and location! So if you say what area you’re from maybe someone might have a reference.

      • Alison Miller said,

        January 16, 2014 at 4:24 am

        Thank you so much for responding :) I actually have already taken my implants out 8 months ago. I have the added stress of having had silicone injections in my lips 14 years ago so I have free floating silicone throughout my body. I was living in Dallas last year, where I had my breast implants removed and a “lip reduction” to remove scar tissue and anything in my lips. I was working with a great naturopath to help detox, but in reading this article here I feel like I need someone who is much more knowledgable on this subject. I am now currently living in Tampa, FL.

  40. Linda Whiting said,

    January 28, 2014 at 1:17 pm

    I have a Myrena coil which I think is causing side effects. Symptoms:- aching and stiff joints, fatigue, thinning hair, dry eyes, dry mouth and peeling lips. My white blood count is low so I’ve had another blood test to check for auto immune arthritis but after researching , I think maybe I’m reacting to the silicone. I’m having the Myrena coil removed next Tuesday. I live in the UK. Does anyone know if I can get the blood test to check for silicone poisoning on the NHS? Also, does anyone know of a legal firm in the UK which would investigate my concerns with Myrena?
    LW

    • gabby said,

      July 28, 2014 at 11:47 pm

      Hi Linda! I’m in the UK too, feel free to find me on FB or whatever it’s gabriella artini and yes, you can contact acumen on Devon and do a silicone hypersensitivity test! It just shows reaction to silicone, not the levels you have inside but it’s a start to show docs… (although they won’t believe it until a big pharma tells them..) your doing the right thing, get it OUT! and start detox.. X

  41. Nicole Michelle said,

    February 10, 2014 at 10:22 am

    I have over 10 common symptoms of silcone toxicity, but now I am itching every single day and getting hives. Does anyone else have this problem?? There is not a correlation with any foods that I am eating so I’m starting to think my implants are the problem…

    • Pam said,

      February 13, 2014 at 2:39 am

      Yes that is also one of many symptoms I am having to. only no hives. my skin is soooo dry I have no moisture what so ever. my hair to is dry. I itch from my head to my toes bad it drives me crazy!!!!

      • mamaz57k said,

        February 17, 2014 at 9:22 pm

        I had something like that on my legs. So dry and itchy that I would scratch until they bled. Of course the dermatologist prescribed something that was so strong “it can only be used for 10 days or you skin wil get thin”. Clearly I didn’t get it but I found when I used shaving cream it would happen again. I only use natural oil now, and even though I am still dry as the desert, no more itching. No more chemicals for any of us girls!

      • Nicole Michelle said,

        February 19, 2014 at 1:43 pm

        I actually went to the allergist today and turns out that I have dermatographism aka “skin writing”. If anything bumps into me or if I scratch my skin it puffs up and gets all itchy in the shape of the scratch. Very strange..

  42. Elena said,

    February 17, 2014 at 12:20 am

    Thanks Anita, I will not remove the lympnotes but still need to see he dr. because Im still a little sick even though my implants where removed in 2011.

    • Elayne said,

      February 25, 2014 at 6:44 am

      So glad I found this discussion with those who are or have been going through this implant problem. I just discovered from my last mammogram ( two weeks ago ) that I have a rupture on the left breast. These implants are silicon and have been there for about 38 years. Seems the mammogram I had in 2007 also showed a rupture but the report to me came back as normal! I will be seeing a Plastic Surgeon this month to get an evaluation on what to do.
      I’m 73 and am having increased joint and muscle pain……have been for some time but did not attribute it to possible symptoms of the rupture but more age related and have been treating it with vitamins, pain killers, etc. After reading this blog now I am really concerned with just getting them out! I have always been in pretty good health all these years and consider myself lucky…..but now with this belated rupture info ……I really am concerned about the damage silicone does to our bodies. So glad I found this site.

  43. joanna said,

    July 14, 2014 at 10:57 pm

    My friend has silicon poisoning and she is down to 98 pounds but can’t get any help. Does anyone know if a doctor in Oregon to help her?

    • July 15, 2014 at 3:22 pm

      The only information I can give to anyone is that, if not for the double mastectomy 7 months ago I would be dead right now. Or at the very least praying to die. There is no amount of detoxing you can do to clear away the poison from implants. Just hours after my operation I felt 50% better. 7 months later, its as if I have a new lease on life.

      Im turning 50 this month and I actually don’t feel it. One year ago I would have never said that. Im in Canada and the mastectomy was paid for by health care after it was confirmed that I had silicone poisoning. I don’t know if I got lucky, but I did have a couple of specialists that seemed to go to bat for me. I also had a dozen other specialists that DID NOT go to bat for me. But in fact wrote me off. So a little bit of luck on my side, and I hope for lots of luck for everyone out there! Keep praying and keep knocking on dr’s doors.

      the only reoccurring thing I still have is an allergy to any kind of silicone ingested. I have a bad reaction to silicone fillers in pills etc.


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